Let’s cut to it — I’ve been struggling for a bit now. It’s been about 3.5 weeks of dealing with this harsh, and seemingly unwarranted, flare. First it was my face and neck, the usual places that give me trouble, and then my hands and arms got worse, the redness and dryness surging on pieces… Continue reading Requiem for a Quarantine
“This is the most impossible condition to explain to people because you see what’s going on on the surface, but you don’t see what’s going on underneath the surface.” – Janelle Norman, Preventable I am in awe that one year has passed since the launching of my documentary — of our documentary. So many voices… Continue reading Preventable Anniversary
My fingers have been itching to sit at this laptop and configure words that may possibly, eventually, make something of all the clatter and noise inside my head. I’ve been thinking about the Topical Steroid Withdrawal community a lot. For two, really two and a half years, I had toiled over a documentary that I… Continue reading 20/20 in 2020
This month is Eczema Awareness Month. Years ago I never would have believed such a thing existed. Who needs awareness about eczema? Having lived with TSW, Topical Steroid Withdrawal, for over 4.5 years now, my view has drastically changed. Millions of people are stricken with eczema and there is such a large stigma around it.… Continue reading The One Worth Knowing
“And when that doesn’t happen, you heal yourself. You find strength in things other than people. You find energy in your solitude, you find hope in your daydreams. You build yourself up, tell yourself that you don’t need anyone to save you, that you don’t need anyone to steady your foundation. But you do.” As… Continue reading The Juggle Struggle
On this final day in England, Indian food in my belly while staring out into the garden, I am situated in a recliner with a bandage on my neck, plasters around my fingers, cotton gloves on my hands, and am properly greased up like a fresh Tin Man. I’ve even got the heather grey sweater… Continue reading White Flag
They say we either write when we are falling in love, or falling apart. I can not say, without dramatic use, that I am either, but it often times feels like the latter. I retreated to a watery refuge yesterday. For some reason, when I’m in the water, it’s as if it quiets all the… Continue reading Be The Wilderness
The weeks have been blurred and have been running by so quickly because of work. I am putting both week 4 + 5 together. My hip does not hurt as much anymore, but I am still careful of how much I am doing to it. I am slowly starting to rehab it into being back… Continue reading Week 4 + 5 (Stem Cell)
“Miss, are you you sick?” “Yes, I am.” “I can tell because your neck is red.” I didn’t have the energy or, quite frankly, composure to tell an 11-year-old student that my obnoxious cold has nothing to do with why I’m a red, blotchy disaster. At 44 months T.S.W. and succumbing to the plague that… Continue reading The Threadless Labyrinth
I’ve had cabin fever for months now. Every so often, I get to venture out, but for the most part, I was secluded in my home working on the documentary (I’ll make an update video soon). I was looking forward to getting back into my old job of subbing — not because it’s my passion,… Continue reading Use Warm Water
