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Found in Reverie

Memoirs of a little bird

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Category: Listen Up

Listen Up · TSW · Uncategorized

Requiem for a Quarantine

April 4, 2020 brianarachelle233 Comments

Let’s cut to it — I’ve been struggling for a bit now. It’s been about 3.5 weeks of dealing with this harsh, and seemingly unwarranted, flare. First it was my face and neck, the usual places that give me trouble, and then my hands and arms got worse, the redness and dryness surging on pieces… Continue reading Requiem for a Quarantine

Listen Up · TSW

Preventable Anniversary

March 22, 2020 brianarachelle23Leave a comment

“This is the most impossible condition to explain to people because you see what’s going on on the surface, but you don’t see what’s going on underneath the surface.” – Janelle Norman, Preventable I am in awe that one year has passed since the launching of my documentary — of our documentary. So many voices… Continue reading Preventable Anniversary

Listen Up · TSW

Inevitably

January 25, 2020January 25, 2020 brianarachelle235 Comments

Today marks my 5 year anniversary of starting Topical Steroid Withdrawal. To think I’ve carried this around for half a decade is mind boggling, but as a friend once told me, “perhaps you were born for such a time as this (Esther 4:14).” I’ve always wanted to believe that. And if I am meant to… Continue reading Inevitably

Help ITSAN
Listen Up · TSW

Help ITSAN

March 16, 2019 brianarachelle23Leave a comment

This is an important letter written by ITSAN. They need your help. We would be nowhere without this nonprofit. The Future of ITSAN is at Risk for 2019! Dear TSW family, We at ITSAN have been working really hard this past year to break through the resistance to TSW in the medical community – to… Continue reading Help ITSAN

Bird Scribble · Listen Up

2018 Resolution

December 29, 2017December 29, 2017 brianarachelle231 Comment

As we enter into a new year, many of us try and figure out what our next 365 days will hold, or at least what we can control. Some make goals; some make resolutions. Others don’t wish to put that much pressure on themselves and just allow January 1st to be another day. Ever since… Continue reading 2018 Resolution

THANKFUL TO ITSAN
Listen Up · TSW

THANKFUL TO ITSAN

November 24, 2017 brianarachelle23Leave a comment

Usually around Thanksgiving we reflect on our surroundings, our decisions, and what we have taken for granted in our lives that deserve recognition. Or is that just me??… And I usually shine a light on my phenomenal inner circle of friends and on my family who has gone above and beyond these past few years.… Continue reading THANKFUL TO ITSAN

Love, Inferno
Listen Up

Love, Inferno

October 31, 2017October 31, 2017 brianarachelle231 Comment

I celebrated my birthday today. It’s usually a time of reflection, of celebration of self, or an acute realization of our mortality that has unfortunately progressed. But I didn’t find myself either relishing or despising this trip around the sun. What I did feel though — despondence. Not the greatest feeling on your big day.… Continue reading Love, Inferno

Listen Up · TSW

Call To Arms

January 16, 2017January 16, 2017 brianarachelle23Leave a comment

To all my warriors and skin condition sufferers, As you may or may not know, I have been working on a documentary endeavor since October 1st regarding Red Skin Syndrome and the need to disseminate the extremely important information about the dangers of chronic steroid use. Strides have been made, yet it is nowhere near… Continue reading Call To Arms

Washington, D.C. Videos
Listen Up · TSW

Washington, D.C. Videos

November 8, 2016November 8, 2016 brianarachelle23Leave a comment

Hey loves! I wanted to put a post together where you could locate all 3 of my ITSAN videos. We spent 3 days in Washington, D.C. this past September 2016. I was a patient advocate and tried my darnedest to keep up with the medical jargon and terms being thrown around. I hope these videos… Continue reading Washington, D.C. Videos

Celebs with Heart · Listen Up · TSW

5K Go Get It LIFE NYC

October 23, 2016October 23, 2016 brianarachelle23Leave a comment

This past weekend, I had the amazing privilege to meet Meghan and Theo Rossi during their Go Get It LIFEĀ event in Staten Island, October 15th Over a year ago, they featured my story about battling Red Skin Syndrome. I have been following their site since then and am amazed at how many lives they have… Continue reading 5K Go Get It LIFE NYC

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