Let’s cut to it — I’ve been struggling for a bit now. It’s been about 3.5 weeks of dealing with this harsh, and seemingly unwarranted, flare. First it was my face and neck, the usual places that give me trouble, and then my hands and arms got worse, the redness and dryness surging on pieces… Continue reading Requiem for a Quarantine
“This is the most impossible condition to explain to people because you see what’s going on on the surface, but you don’t see what’s going on underneath the surface.” – Janelle Norman, Preventable I am in awe that one year has passed since the launching of my documentary — of our documentary. So many voices… Continue reading Preventable Anniversary
Today marks my 5 year anniversary of starting Topical Steroid Withdrawal. To think I’ve carried this around for half a decade is mind boggling, but as a friend once told me, “perhaps you were born for such a time as this (Esther 4:14).” I’ve always wanted to believe that. And if I am meant to… Continue reading Inevitably
This is an important letter written by ITSAN. They need your help. We would be nowhere without this nonprofit. The Future of ITSAN is at Risk for 2019! Dear TSW family, We at ITSAN have been working really hard this past year to break through the resistance to TSW in the medical community – to… Continue reading Help ITSAN
As we enter into a new year, many of us try and figure out what our next 365 days will hold, or at least what we can control. Some make goals; some make resolutions. Others don’t wish to put that much pressure on themselves and just allow January 1st to be another day. Ever since… Continue reading 2018 Resolution
Usually around Thanksgiving we reflect on our surroundings, our decisions, and what we have taken for granted in our lives that deserve recognition. Or is that just me??… And I usually shine a light on my phenomenal inner circle of friends and on my family who has gone above and beyond these past few years.… Continue reading THANKFUL TO ITSAN
I celebrated my birthday today. It’s usually a time of reflection, of celebration of self, or an acute realization of our mortality that has unfortunately progressed. But I didn’t find myself either relishing or despising this trip around the sun. What I did feel though — despondence. Not the greatest feeling on your big day.… Continue reading Love, Inferno
To all my warriors and skin condition sufferers, As you may or may not know, I have been working on a documentary endeavor since October 1st regarding Red Skin Syndrome and the need to disseminate the extremely important information about the dangers of chronic steroid use. Strides have been made, yet it is nowhere near… Continue reading Call To Arms
Hey loves! I wanted to put a post together where you could locate all 3 of my ITSAN videos. We spent 3 days in Washington, D.C. this past September 2016. I was a patient advocate and tried my darnedest to keep up with the medical jargon and terms being thrown around. I hope these videos… Continue reading Washington, D.C. Videos
This past weekend, I had the amazing privilege to meet Meghan and Theo Rossi during their Go Get It LIFE event in Staten Island, October 15th Over a year ago, they featured my story about battling Red Skin Syndrome. I have been following their site since then and am amazed at how many lives they have… Continue reading 5K Go Get It LIFE NYC
