TSW

15 Months TSW (Red Skin Syndrome)

Hey guys!

Sorry, I am a bit late with this post. I was on a cruise (woot!) so I was not near wi-fi. Can you believe it? I went on a Caribbean cruise, in the sun, all day! Well, I was covered up from head to toe (with a lovely flappy hat), but a year ago I would NEVER have been able to do this.

It was a great time. I was able to see old friends in the production cast, visit some beautiful spots (Blue Hole in Jamaica, Zip line in Haiti, La Choza in Mexica) and my husband and I won a Movie Trivia game on board! I GORGED my face with food. Way too much. It set me back with my good eating and working out. I did use the gym everyday but my heart wasn’t in it (probably because it was buried in frozen yogurt and tons of sugary goodness).

I’m pretty sure my skin didn’t like all of the sugar, but I couldn’t help it. I was pretty red in certain spots and itchy. My neck was pretty aggravated the entire trip. It’s not oozy per say (the back is a bit if I stretch it too much), but it’s more spotty, like an allergy irritation.

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The two pics above were earlier than the next ones

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This was me before/during the cruise —

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My cheeks were very spotty, my neck was irritated, and around my mouth was either red or dry. My eyelids as well would be itchy from time to time.

I am about to drive down to Miami with my husband for a wedding and 7 days of work at Royal Caribbean studios. I’ll be helping to teach one of the aerial shows. My strength still isn’t all the way back, but I can still demonstrate things which is what counts. I am super excited about it!!

So, that’s really all I’ve got for you. Oh! Well, I got my 23andMe results back but haven’t gotten to look them over. I will be doing that in a few days and will get back to ya then!

Love, B. R. Wren

4 thoughts on “15 Months TSW (Red Skin Syndrome)

  1. Dear B,

    I just wanted to thank you wholeheartedly for all the fun and encouraging videos you posted. I’m in my third month and as you know it’s hell especially having to take care of three kids and hubby. I still am very grateful despite of the circumstances as I have a lot of support from my husband, family and friends. I am glad to see you are looking better. I need to have your spirit, you are strong and are making it easier than it looks like. I tend to wallow in self pity and all the other emotions. Thank you again and God bless you!

    Speedy recovery,
    M

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    1. Trust me, it’s not always easy to be positive so don’t beat yourself up. This condition robs us of all of the things we love. But you must be a fighter to keep on going through this. Give yourself immense credit! And every morning, list the things you are grateful for in your head and it helps with the process. I always look at what I still have and not what I’ve lost. Being able to hold on to those thoughts helps me keep going x thank you for your lovely message!

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  2. Dear Briana,
    Month after month I have checked your blog waiting to hear that you are healed, and finally it seems like the day is not far, you look really good! My 6 year old daughter has been going through TSW for one year now and your blog has been a invaluable source of hope and inspiration. Our daughter is 90% healed and looking back at pictures of her from even before she stopped using topical steroids has given us the strength to carry on but we are SOOO glad we did it and did not listened to all those doctors who said she was a chronic eczema sufferer and the only solution was to apply stronger steroids. She missed many months of schooling but she now lives a normal life, her hair has grown back stronger, goes to school, birthday parties, loves swimming and although she still has a few itchy spots/moments she enjoys her life to the max. We live in SE Asia and can benefit from sunlight all year around. I believe this has also helped her.
    Nobody, nobody understands how hard TSW is, unless you or your family has been through it.
    Wishing you all the best in your recovery and keep writing. You have real talent.
    Lauraxx

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    1. Hearing stories like this gives me such happiness. The suffering through is the dreadful, heartbreaking part, but hearing the spirit you both have had and having to push through is a true testimony to your inner courage and faith. I’m so happy my blog has been helpful. I truly hope one day we can put this condition in the trash and no one will ever have to endure it. We are literally soldiers in this war, trying to exterminate it’s existence xo

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