TSW

A Full 3 Months

April 25th, 2015 marked 3 months of my TSW journey. It’s been quite a ride, one that I do wish would end.

Progress: or lack their of…

After debarking the cruise, I hoped my face would stay the same. Something about the cruise ship air made my skin a bit more bearable. However, since I’ve been back, it’s given me trouble.

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Above, is before I shower. Below, is after. All of the redness correlates to spots that ooze. By the end of the day, I am back to being flaky with skin and dried ooze.

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My chin is the worst spot. It is relentless! It burns. Sometimes I have to cover it in sudocrem.

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Some days are better than others. Just have to hope for the best.

My hands are also extremely flakey. They can be painful. Sometimes it’s bearable, sometimes it can be quite an annoyance.

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See how it’s spread…

The elephant skin is also another lovely symptom.

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I’ve got 90 year old elbows and knees.

The shedding is still alive and well. My skin is dry 24/7.

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Bleh bleh bleh!

Aside from my skin, my eyes and my hair/scalp are also on a downward spiral. I’m having my eyes checked on May 11th. I get blurry vision. Actually, it’s more like swimming underwater with my eyes open. It’s not the center of my pupil, but the outsides that seems blurry.

And then my hair. My poor, poor hair.

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I broke my brush, that’s how bad it is. My hair is constantly knotted with hair that is lose and falling out.

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I’m going to cut about 9 inches off to help with the constant shedding. Not going to lie, I hate thinking about cutting it off. But that’s life. We adapt.

If cutting it shorter doesn’t help, then buzzing it off my just have to happen. My scalp is terribly dry and parts of it ooze. Might be easier to take of it if it’s hair free.

Here are a few more photos from these past two weeks.

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Despite my condition, I’ve continued to stay positive and do what I can. Although my life is still very disconnected from what I now consider my ‘former life’, at least I was able to write these past two weeks. I finished a screenplay and entered it into 3 contests. With someone who has TSW brain (which is mush half the time), I accomplished something great. May not be to others, but to me, it gave me a purpose, a reason to get up in the morning.

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Keep your chins up. Keep those spirits high.
Love, B. R. Wren

4 thoughts on “A Full 3 Months

  1. Briana, you’re a true warrior! What would make some bed bound and totally incapable does not seem to affect you as badly, and that’s no small feat! It’s amazing, just really amazing, that you’re even working and being creative too! Hope you won’t have to suffer for too long! God bless you and be kind to you!

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    1. Thanks love. 🙂 You are truly incredible as well!! I am so excited you got two different articles out in England talking about this. And my screenplay is an animation (sort of Finding Nemo meets the Olympics). I called it H2Olympics. Just a funny screenplay that I hope gets picked up. xx

      Like

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