The longer time passes, the more permanent this condition seems to be. It’s crazy to think that almost half of a year has gone by and I am still in this hell, all from using topical steroids that a doctor prescribed me.
They are so dangerous. Topical steroids can destroy your life.
As you can see, there was one day where my chin was so bad it was soaking through paper towels. It hasn’t been that bad in a while, but that’s what I LOVE about T.S.W.– surprises! It does whatever the hell it wants to do, whenever it wants to do it.
I am disgustingly dry and itchy. Extremely dry, everyday. Itchy, everyday. I lather myself in my home made shea butter about 10 times a day. Literally. And I’ll STILL be dry! Never ending.
Skin, skin, and more skin. Dead skin in my bathtub, daily. I have to wipe it up to take a bath (all over those towels). Swept up skin from my bathroom floor. Dead skin in my shaven hair. I can’t wait till this is over…
Having to deal with dust mites now. They feed off of dead skin, of which I can’t seem to have enough of… so I am constantly going to vacuum every surface 2 to 3 times a week. I’ll Lysol the shit out of the carpet and sofa and bed. So tiring.
However tired I am, I am still going strong. Screw T.S.W. — when I’m done with it, life will be mine for the taking. I’ll be dancing, flying, lifting, riding, boating, hiking, swimming, traveling, you name it.
Love, B. R. Wren
2 thoughts on “5 Hefty Months”
First of all love your videos. I’m also going through tsw. It’s pure hell!! Looking at your pics I can feel every one. Every stage. I’ve been going through this for years and only last week after typing in red skin on Google and finding all this information did in realize I’m not crazy but have a real problem. I wish you well and I know I have a tough road ahead with dyson vac by my side!
I’ll be on The Doctors show for TSW, filming this Friday. Not sure what the air date is, but I can let you know. They have helpful tips. I also think you should get a 23-and-Me genetics test done to see if anything going on inside of you is contributing to the condition. I am ordering mine soon since I found out I have the MTHFR gene mutation, of which there are thousands of different ones (which can be seen on the 23-and-me test). There is one that actually says you can not handle steroids! Crazy! I wish you well, hun!