Time is flying! Strangely, I have become a bit used to this limbo way of life. I’m in between getting better, but not enough to be back to normal. Annoying, right? However, after the crappy cold I had this week (Sunday- Wednesday), I felt a huge surge of energy. I cleaned the entire house, even moved the furniture around to create a new, positive energy. My joints are paying for it today, ha, but makes me happy feeling a bit more alive now.
Here is my progress 4.5 months in
Head/FaceÂ
Hands/Arms/Legs
My hands have gotten a bit worse in the sense that it has spread. Also, my feet. Saddens me. But it only seems to be light. My elbows are extremely dry. Nothing seems to help it. Time will be my only true healing.
Bed and Bath
Gross, eh? Can’t wait till I don’t have any ooze in bed or skin/hair in my tub.
Genuine smile. Feeling better day by day. Some days get me down, but I am so happy I quit using topical steroids. They aren’t what they are cracked up to be if doctors aren’t going to prescribe them cautiously.
Here are my two videos!
Video 1) Tells you a lot about Topical Steroid Withdrawal (what I am going through)
Video 2) A follow up on the first video
Love, B. R. Wren
Much Love and prayers go up for you everyday!
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Your videos are great, I saw them on youtube and just happened to find your blog when doing my usual TSW rounds on google for my lunch hour. 🙂 I’m 5 weeks in TSW today. (One day at a time…it’s frustrating that I have no way of predicting where this withdrawal is going to take me.) I also appreciate reading about this from one creative soul to another (I’m an illustrator and artist…it could turn into some interesting work inspiration. Le sigh.) We keep on fighting!
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Yes, tsw can be quite frustrating since there is no true time frame 😦 but you’re an illustrator! That’s awesome. I’ve written 4 children’s books. I’ve been wanting to have them published. I “illustrated” the first one, but they are no where near as wonderful as your art work 🙂 I saw your site. Beautiful.
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Aww! Thank you for visiting my site! (I am still figuring out wordpress comments, same Susan… blarf)
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You are amazing and very brave women!!! Every one who stop using steroids must have big cohones 😉 I wish You more health day without itching 🙂 I stop using steroids 10 may. TSW It is like a carousel. Good luck 🙂
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