Let’s cut to it — I’ve been struggling for a bit now. It’s been about 3.5 weeks of dealing with this harsh, and seemingly unwarranted, flare. First it was my face and neck, the usual places that give me trouble, and then my hands and arms got worse, the redness and dryness surging on pieces… Continue reading Requiem for a Quarantine
“This is the most impossible condition to explain to people because you see what’s going on on the surface, but you don’t see what’s going on underneath the surface.” – Janelle Norman, Preventable I am in awe that one year has passed since the launching of my documentary — of our documentary. So many voices… Continue reading Preventable Anniversary
I was looking for an outlet tonight and I started to scroll through a slew of memes and quotes (naturally), and funnily enough, one told me to grab a cup of hot chocolate. I quickly remembered that I had a random pack of cocoa mix sitting in my bag from work. I snatched it up,… Continue reading Just as I Am
This month is Eczema Awareness Month. Years ago I never would have believed such a thing existed. Who needs awareness about eczema? Having lived with TSW, Topical Steroid Withdrawal, for over 4.5 years now, my view has drastically changed. Millions of people are stricken with eczema and there is such a large stigma around it.… Continue reading The One Worth Knowing
This is an important letter written by ITSAN. They need your help. We would be nowhere without this nonprofit. The Future of ITSAN is at Risk for 2019! Dear TSW family, We at ITSAN have been working really hard this past year to break through the resistance to TSW in the medical community – to… Continue reading Help ITSAN
The weeks have been blurred and have been running by so quickly because of work. I am putting both week 4 + 5 together. My hip does not hurt as much anymore, but I am still careful of how much I am doing to it. I am slowly starting to rehab it into being back… Continue reading Week 4 + 5 (Stem Cell)
This is super late, my apologies, but life has been hectic. I am 3.5 weeks out of having the stem cell infusions at the IMAC center in St. Louis. I have still not seen any progress in my skin. It’s discouraging, but that’s how it goes. Perhaps that means I could have an internal issue… Continue reading Week 3 (Stem Cells)
It has been 2 weeks now since my stem cell infusion into my hip and arm. My hip is still sadly sore. I haven’t been able to rest it a lot in the sense of not moving around a lot since I do teach dance at school, but I have been mindful of not doing… Continue reading Week 2 Update (Stem cells)
It has been officially one week since my stem cell infusions. I had one into my hip, and one into my arm. My hip is still a bit sore. I wasn’t anticipating this, but I am a dance teacher and do have to move around a lot. I am trying my best to not jump… Continue reading Week 1 Update (Stem Cells)
4 years. 209 weeks. 1,462 days. of loss. of confusion. of fear. of battle scars. of thunderous, terrifying purpose. Looking back to Day 1, when hopes were high and knowledge was scarce, it is miraculous to see how far this journey has taken me. I am not the same person. Sometimes that makes me sad… Continue reading 4 Years
Found in Reverie 