Yea for 1 year of marriage with my husband!! Crap that I’ve been going through TSW for 7.5 months!! Ha, kind of funny, but not.
For our 1 year, I decided that I didn’t care how I felt, we WERE going to have a nice time in Atlanta, GA. We went to the Aquarium on the 4th and the Zoo on the 5th. We both love animals so it was right up our alley.
The day we went to leave, my face was not having it. But, my rats love me anyway!
I was very oozy on my face, as well as very red. You can’t tell in the pictures but I was not in the best way. Jack wrapped my face at the hotel to see if it would help the next day. It did!
On the 4th, my face wasn’t so angry. Jack and I arrived at the Aquarium, got me a wheelchair, and away we went!! Loved it!
After lunch, the itches and hot flashes for me began. So, instead of going out to dinner, Jack grabbed us some P. F. Changs and we feasted in the hotel. He even wrapped me all up! I have been using Viscopaste on my hands and feet and even my face when needed. Great stuff!!
Next day, my face was back to being a problem. Poop! My chin was not happy but we forged on anyway. Now, I wasn’t extremely comfortable at the zoo. I had a great time (got another wheelchair and was pushed around) but, there were stares, mostly children. I was eye height to them. Two little boys went out of there way to stare at me. One literally came up from behind me, slowly, and was RIGHT UP in my face, staring peculiarly. His mom quickly grabbed him and apologized. Another boy went out of his way to run up from behind me while I was eating lunch and get a quick peak at me. His father told him that was rude, but the child said “he just wanted to see.” I think he was confused if I was a boy or not. The one that really annoyed me was a girl, most likely 10 or 11, standing next to me with her ice-cream… staring. She knew better. I quickly turned my head to look at her and she turned her head away.
To all TSW sufferers, it’s ok to feel awkward and upset that you are going through this. I try not to be too bothered when people stare. Curiosity isn’t a bad thing. It can be a rude thing at times, but a lot of women in my support group use it as a way to help educate people. I think I may try and do the same. I want to make some small little flyers about what TSW is, and I will hand them out to those who seem curious — euphemism for staring lol. You never know, you may help someone!
After, we hit the hotel once again and relaxed. I decided to take a few body pics to show what my skin was like on vacation.
The next day, we sadly had to leave. My scalp was acting up. SO MUCH ooze on my scalp, it’s crazy!!!!
Yea for trip! Can’t believe where we have come in a year!
Now, back to the past. I stopped MW (Moisture Withdrawal). I couldn’t do it anymore, especially with the trip coming up for us.
To be honest, I am not sure MW did anything to help me. I did it for 3 weeks. Some people say to do it longer. However, I have seen people do well from it, and some not get any better (or maybe even worse). So, do what your body tells you. Listen to it.
This is late August
Here is my horrid scalp. It was SOOOOOOOOOOO thick with ooze.
We also tried a lot of sucodrem and Viscopaste for my face to get back to a normal(ish) state after MW.
And here is my chin… doing what it wants day to day.
I also put this picture up because it may look great, but its oozing. There are tiny dots all around that the ooze comes from.
And here is a fun one of me yesterday, and then my lip today. Ouch!
These next two weeks are going to be a bit crazy for me. Jack (my husband) leaves for his tour on Monday *tons of sad faces*. He is joining the technical crew for Disney on Ice, Dare to Dream. I will miss him dearly. I will be moving in with my mother so she can help me. Lots of changes! But I look forward to the future, and change isn’t always a bad thing.
Love, B. R. Wren