So, 13 months in and I’m slowly but surely progressing.
I still have problem areas (ankles, hands, knees, and parts of my face), and that plastic skin is still hanging around, but I feel so much better than I did a year ago. I can’t believe it’s been 13 months, but I have more energy now.
I have been working out in the mornings. I do 20 minutes on the elliptical, and then stretch in the evenings. Yes, my skin burns from the sweat, especially in crease areas, but I try and push through. I’m tired of being in limbo and waiting around. I take an apple cider vinegar bath right after, sometimes throwing in some epsom salt.
The itch goes up and down. Some days are worse than others. It’s sadly become normal to be itchy so the days where it’s just a small lingering itch I’ve gotten used to.
I also have very deep creases in parts of my body (knees, ankles, elbow area, wrists, shoulders, neck). It’s mostly from extreme dryness and elephant skin.
I have been using shea butter mostly as a moisturizer. I’m running low on The Home Apothecary’s gift of her Tea Tree and Lemongrass. It has been so lovely on my skin. I really enjoy it. I also use Sudocrem when needed, and Vaniply on dry areas.
I wear white cotton gloves some nights if my hands are really bad (usually every other night or so). I still cover them as well when I go out.
Keep fighting on warriors. Topical Steroid Withdrawal may be tedious, painful, and unrelenting at times, but I am so glad I found out why my body was so sick. Topical steroids (any steroid, truly) should never be used for long term. More than 2 weeks can cause RSS (Red Skin Syndrome). I understand that finding a doctor to support you may be tough since most push using topical steroids. But, if you truly see and feel like you are going through RSS, fight for your health.
Keep spreading the word. Hopefully one day no one will ever have to go through this again.
Love, B. R. Wren