Amidst editing and trudging through all the hurdles with the documentary, I have been thinking about analogies concerning Topical Steroid Withdrawal. We are always having to try and explain, or make known, or express how frustrating this condition is in our lives. Especially with doctors, it never seems to gain stride as to how UNBEARABLE… Continue reading Willy Wonka
There are times, more and more as the days pass, that I wish I was better. Not only for myself, but for public acknowledgment that this truly exists. I am one week shy of being home from shooting the documentary, Preventable: Protecting Our Largest Organ, and it would have been so much grander to do… Continue reading 2.5 Years TSW
Hey loves! I wanted to put a post together where you could locate all 3 of my ITSAN videos. We spent 3 days in Washington, D.C. this past September 2016. I was a patient advocate and tried my darnedest to keep up with the medical jargon and terms being thrown around. I hope these videos… Continue reading Washington, D.C. Videos
Big things in the works guys, sorry I have not been very active making videos and writing blogs but there will be PLENTY of them soon!! I am working on a website (hoping to post it publicly October 1st!) about my documentary endeavor to raise awareness about Red Skin Syndrome and the prevention that needs… Continue reading 20 Months TSW
I’ve passed the 300 day mark (310)! Not really exciting in general, but to see how far I’ve come is pretty mind-blowing. It’s been a long journey with some road still ahead, but it feels much easier to track now. Knock on wood I don’t regress. I am STILL waiting for my MRSA swab results.… Continue reading 10 MONTHS TSW
Oh you topical steroid creams! Causing people such a ruckus! Many doctors prescribe them and many patients use them. It sucks, but some patients end up addicted to them. Not like alcohol addicted (I don’t go to meetings), but our bodies get so used to having steroids that they rebel when we stop using them. The… Continue reading Month 1 TSW
Found in Reverie 