I’ve passed the 300 day mark (310)! Not really exciting in general, but to see how far I’ve come is pretty mind-blowing. It’s been a long journey with some road still ahead, but it feels much easier to track now. Knock on wood I don’t regress.
I am STILL waiting for my MRSA swab results. I am hoping to get a call today about them. I did, however, just finish a 7 day course of anti-fungal meds (the type I actually needed vs. the type my first dermatologist just kind of threw me on all those years ago). It seems to have helped a lot with my itching. It’s now around a 5-6 instead of 8-9. Woot! But, I am on the phone right now (literally, it’s on speaker) waiting to talk to my insurance company since they decided I can’t have a refill of my anti-fungal cream just yet, even though I need it today. GRRRR. Always speed bumps.
I will also try and make my response video to my Doctor’s segment today. No promises since I have a ton to get done since being back from down south (my hometown), but I really do want to have it done by tomorrow. There was a lot that wasn’t said and the things that were said were not the whole truths.
I had been extremely itchy before the anti-fungal meds. One day it was so bad I just popped an antihistamine and knocked out most of the day. Was not a happy camper.
10 Months TSW
These were taken on Day 3 of my anti-fungal regimen. That is what my face still looks like today. A little more redness in patches today, but so much better than months before.
So itchy!!!! A lot of these spots have gone down a bit in redness since the anti-funal meds.
Still got flaking going on! It’s definitely not as crazy as before but it’s still not fun to deal with. My vacuum is always filled and/or covered with it. And my little belly button still has to deal with TSW. No mercy!
Had me some bloody moments. The ear is gross (sorry), but it was a nightmare that day. It just decided to act up. Also, still have the lovely elephant skin. I don’t think it’s going anywhere any time soon.
This is a weird one. I know you can’t see it well, but there was a week, just one, where my lip kept swelling. At first I panicked because I know about Herpeticum (eczema herpes basically that can come out of nowhere and do serious harm) so I was trying to figure out what to do. But, within an hour, the swelling went away. It kept doing this for a whole week. I also got a shot of my knees, which were horrifically itchy and thick before the anti-fungal meds.
And i’ll end on a happy note! These are my babies that I missed over the Thanksgiving break. It was so nice to spend time with my dad though. Lots of daddy-daughter time. Got him hooked on Boardwalk Empire (score!). He always gives the best advice. Needed some of it this weekend.
I am also on Day 4 of a 14 day cleanse. My system can definitely use a good cleaning. Let’s see if it helps with my skin as well.
Keep going! I know it’s tough, especially with all these other regimens doctors are offering. It’s not an easy road, and I understand when people feel they can’t do it anymore, but I just have to keep in mind that I am doing the best I can for my body. I abused steroids for too long and my body deserves better. Unless I am going into anaphylactic shock, I don’t feel I need steroids ever again. My body will thank me for it. #kickthetoxic
Love, B. R. Wren