I was looking for an outlet tonight and I started to scroll through a slew of memes and quotes (naturally), and funnily enough, one told me to grab a cup of hot chocolate. I quickly remembered that I had a random pack of cocoa mix sitting in my bag from work. I snatched it up,… Continue reading Just as I Am
The weeks have been blurred and have been running by so quickly because of work. I am putting both week 4 + 5 together. My hip does not hurt as much anymore, but I am still careful of how much I am doing to it. I am slowly starting to rehab it into being back… Continue reading Week 4 + 5 (Stem Cell)
It has been officially one week since my stem cell infusions. I had one into my hip, and one into my arm. My hip is still a bit sore. I wasn’t anticipating this, but I am a dance teacher and do have to move around a lot. I am trying my best to not jump… Continue reading Week 1 Update (Stem Cells)
4 years. 209 weeks. 1,462 days. of loss. of confusion. of fear. of battle scars. of thunderous, terrifying purpose. Looking back to Day 1, when hopes were high and knowledge was scarce, it is miraculous to see how far this journey has taken me. I am not the same person. Sometimes that makes me sad… Continue reading 4 Years
I am a little late, but for good reason. I have been working very hard on the documentary and have found little time for other things. I did however get to take one full day off this Sunday (after working 1.5 weeks STRAIGHT, no weekend for me) and I went to Disney World!! It was… Continue reading Month 41 TSW
Amidst editing and trudging through all the hurdles with the documentary, I have been thinking about analogies concerning Topical Steroid Withdrawal. We are always having to try and explain, or make known, or express how frustrating this condition is in our lives. Especially with doctors, it never seems to gain stride as to how UNBEARABLE… Continue reading Willy Wonka
Hey loves, What a month it has been. Whenever I take a dive with my skin, it also effects my emotions. Once I had gotten back from the cruise ship, I got hit with a few scenarios and situations that gave me a load of anxiety (I am still trying to shake it). One major… Continue reading 39 Months TSW
Hello loves, So sorry this is a week late. I was on a cruise ship working and didn’t have time to update. Not much has changed, unfortunately since last month. My worst spots are my arms, neck, and spots on my face. Redness and dryness are my biggest issues. I should be thankful it’s not… Continue reading 38 Months TSW
Sorry for the late post. Been super busy with life! A little too busy sometimes, but trying to be semi normal with a hint of madness — particularly with the documentary. There is lots to get done, but I think I can finish it by my estimated time frame — mid June! As for my… Continue reading TSW 37 Months
3 Years TSW. 36 Months TSW. 1095 days TSW. January 25th 2015-2018. Incredible isn’t it? To have journeyed this long through such a katabasis. The reflection on the loss and gains, ups and downs, triumphs and devastations… it’s like a completely different life. I’m not healed, sadly. But I’ve been coming to terms with that.… Continue reading 3 Years TSW (Topical Steroid Withdrawal)
Found in Reverie 