As we enter into a new year, many of us try and figure out what our next 365 days will hold, or at least what we can control. Some make goals; some make resolutions. Others don’t wish to put that much pressure on themselves and just allow January 1st to be another day. Ever since… Continue reading 2018 Resolution
Tomorrow is Christmas, so I wanted to be a day early. It will be a packed celebratory time with family and friends tomorrow (which I hope I make it through!). Lots of driving, gifts, and hugs to be had. My energy, especially since beginning a work out regimen at the beginning of December, has actually… Continue reading 35 Months TSW
I didn’t exactly start off on the right foot this TSW month. Well, not totally true. I had my birthday, which was lovingly spent with family and my Royal comrades. I enjoyed a Halloween party as well, which was nice since I spent time and energy on my costume. I always wanted to be LeeLoo… Continue reading 34 Months TSW
Another month passed, and not much to report skin wise. I am still stagnant, with my tough areas being — hands, arms, neck, and face. My stomach is acting up, too, but it’s not the most problematic area. It gets a bit exhausting dealing with my facial area and my hands being so frustrating, but… Continue reading 33 Months TSW
I’m a bit late, but I’ve been very busy this past week with documentary footage. I have a goal ahead of me. I would like to have all of the interview footage transcribed by Oct. 26th, before I head back into teach for a week at Royal Caribbean. There is over 24 hours of footage… Continue reading 32 Months TSW
For the past two weeks, I’ve been taking to social media, exhibiting my happiness about getting to work with a Royal cast. All my pictures display smiles, kisses, and general overall bliss. One thing it wasn’t displaying was the state of my skin. It’s very easy, especially with filters and lighting, to make myself look… Continue reading On the Flip Side
Oh my goodness, it’s been a whirlwind of a month! I got back from the documentary shoot on July 29th. A rest from the summer was EXTREMELY needed. I stayed at my mother’s house for about 5 days (she was away so I had it all to myself). I just rested, watched movies, and tried… Continue reading 31 Months TSW
There are times, more and more as the days pass, that I wish I was better. Not only for myself, but for public acknowledgment that this truly exists. I am one week shy of being home from shooting the documentary, Preventable: Protecting Our Largest Organ, and it would have been so much grander to do… Continue reading 2.5 Years TSW
What a month. I feel so exhausted. I am desperately trying to raise money and find ideas for fundraisers with my Red Skin Syndrome Documentary (Preventable: Protecting Our Largest Organ), while also trying to stay motivated through personal struggles. Add Topical Steroid Withdrawal issues, and you’ve got the perfect tri-fecta. I post a lot of… Continue reading 25 Months Topical Steroid Withdrawal
On January 25th, I hit the 2 year mark! Not giving up! When I look in the mirror, I still see everything that is wrong — My face is extremely dry (hence all the skin on my shirt in the picture), I have a red mustache and a red, dry patch in-between me eyebrows, my… Continue reading 2 Years TSW!!!
Found in Reverie 