There are times, more and more as the days pass, that I wish I was better. Not only for myself, but for public acknowledgment that this truly exists. I am one week shy of being home from shooting the documentary, Preventable: Protecting Our Largest Organ, and it would have been so much grander to do all of this while being healed. I feel this pressure of being in the public eye and I just want to SHOW people there is hope, not tell them there is hope.
I’ve been graced these past 49 days to meet so many wonderful and different people going through this horrendous condition. They are from all walks of life, various stages of healing, and have powerful stories. No one is alike, except for one thing: topical steroids are what made their world turn upside down.
I am very passionate about this project and will do my best to honor and portray everyones stories with respect and integrity while editing over the course of these next months. This is a heavy task, one that will take time, so I hope everyone will understand that this is not going to be finished for some time.
As for my own health update, it has been very up and down. The traveling has greeted me with many personal challenges, both physical and mental. My dryness is increased, my exhaustion is quicker to surface, and for the past 5 days I’ve had a horrific stomach ache that comes on whenever I eat food. I’ve never experienced it before, but it might be my body’s way of telling me it’s time to go home soon. Also, in my forearms crease and my neck, I’m getting that weird, ooze type smell, like it’s under the dryness, and if I itch, you can smell it. However, I have tried pushing through in each city around the world because I wish to take it all in. This is a once in a lifetime opportunity and I don’t want to waste it.
Click to enlarge photos
Below: Getting over a sunburn I got on the 4th of July from walking around at the beach getting footage
Above: All the shedding that still happens. Yup. Can’t wait until that’s over.
Above: I was a complete mess this day with my skin, but I pushed through and went to have some aerial time!
Above: My eyelids, near mid July, just got tired of the heat and were giving me such grief.
Above: The little cuts in my neck are so sensitive. It feels like tons of paper cuts.
Here are some fun ones though!!
So, that’s my update. Again, click on the pictures if you wish to see them enlarged. I hope everyone is keeping those chins up xx You are being so brave.
Love, B. R. Wren