I’ve had cabin fever for months now. Every so often, I get to venture out, but for the most part, I was secluded in my home working on the documentary (I’ll make an update video soon). I was looking forward to getting back into my old job of subbing — not because it’s my passion,… Continue reading Use Warm Water
Amidst editing and trudging through all the hurdles with the documentary, I have been thinking about analogies concerning Topical Steroid Withdrawal. We are always having to try and explain, or make known, or express how frustrating this condition is in our lives. Especially with doctors, it never seems to gain stride as to how UNBEARABLE… Continue reading Willy Wonka
Hey loves, What a month it has been. Whenever I take a dive with my skin, it also effects my emotions. Once I had gotten back from the cruise ship, I got hit with a few scenarios and situations that gave me a load of anxiety (I am still trying to shake it). One major… Continue reading 39 Months TSW
Hello loves, So sorry this is a week late. I was on a cruise ship working and didn’t have time to update. Not much has changed, unfortunately since last month. My worst spots are my arms, neck, and spots on my face. Redness and dryness are my biggest issues. I should be thankful it’s not… Continue reading 38 Months TSW
There are times, more and more as the days pass, that I wish I was better. Not only for myself, but for public acknowledgment that this truly exists. I am one week shy of being home from shooting the documentary, Preventable: Protecting Our Largest Organ, and it would have been so much grander to do… Continue reading 2.5 Years TSW
Hey loves, Sorry this is 2 days late. Things have been all over the place with getting ready for the documentary. I am still fundraising and need just about 2k more to have everything I need paid for (for production purposes). We can worry about editing funding later. I’m super nervous/excited/psyched to have this opportunity.… Continue reading 27 Months TSW (Topical Steroid Withdrawal)
Every time I go to write one of my blogs, it still makes me think, “Wow… another month has gone by and I’m still not healed.” It sucks, it truly does, but here we are at 22 months without any steroids. I have definitely had a lot of stress these past two months and have… Continue reading 22 Months TSW
I’ve passed the 300 day mark (310)! Not really exciting in general, but to see how far I’ve come is pretty mind-blowing. It’s been a long journey with some road still ahead, but it feels much easier to track now. Knock on wood I don’t regress. I am STILL waiting for my MRSA swab results.… Continue reading 10 MONTHS TSW
Another update! My body is definitely changing in and out of stages. Hopefully for the better!! However, 3 days ago, May 13th, 2015, I did the unthinkable. I chopped off all of my hair. Now, that doesn’t seem very epic to some people. To be honest, it shouldn’t be. However, I had VERY LONG hair. I… Continue reading TSW: V for Vendetta (3.5 Mark)
“Do not confuse my bad days as a sign of weakness. Those are actually the days I am fighting my hardest.” -Anonymous This ‘diagnosis’ of ‘not sure what’s been going on’ has been so difficult. I have been scratched tested with allergens, injected with more, had my blood taken two days in a row (and… Continue reading When Will It End…
Found in Reverie 