Amidst editing and trudging through all the hurdles with the documentary, I have been thinking about analogies concerning Topical Steroid Withdrawal. We are always having to try and explain, or make known, or express how frustrating this condition is in our lives. Especially with doctors, it never seems to gain stride as to how UNBEARABLE… Continue reading Willy Wonka
There are times, more and more as the days pass, that I wish I was better. Not only for myself, but for public acknowledgment that this truly exists. I am one week shy of being home from shooting the documentary, Preventable: Protecting Our Largest Organ, and it would have been so much grander to do… Continue reading 2.5 Years TSW
I apologize in advance for the brief update. I am out on Day 20 now shooting the documentary, Preventable: Protecting Our Largest Organ. I must be clinically insane to have done this, but it has been magical so far, as well as exhausting. Want to follow along with my documentary journey? Here is how you… Continue reading 29 Months TSW
Hey loves! I wanted to put a post together where you could locate all 3 of my ITSAN videos. We spent 3 days in Washington, D.C. this past September 2016. I was a patient advocate and tried my darnedest to keep up with the medical jargon and terms being thrown around. I hope these videos… Continue reading Washington, D.C. Videos
I decided, for the first time ever, to write a note to a PA and leave it at their facility. I have seen this man (who is NOT a doctor, just a physicians assistant — which I was not aware of–) twice for two different problems. Both times I was extremely dissatisfied with his care. I… Continue reading Assembly Line Care
Found in Reverie 