This is super late, my apologies, but life has been hectic. I am 3.5 weeks out of having the stem cell infusions at the IMAC center in St. Louis. I have still not seen any progress in my skin. It’s discouraging, but that’s how it goes. Perhaps that means I could have an internal issue… Continue reading Week 3 (Stem Cells)
4 years. 209 weeks. 1,462 days. of loss. of confusion. of fear. of battle scars. of thunderous, terrifying purpose. Looking back to Day 1, when hopes were high and knowledge was scarce, it is miraculous to see how far this journey has taken me. I am not the same person. Sometimes that makes me sad… Continue reading 4 Years
I am a little late, but for good reason. I have been working very hard on the documentary and have found little time for other things. I did however get to take one full day off this Sunday (after working 1.5 weeks STRAIGHT, no weekend for me) and I went to Disney World!! It was… Continue reading Month 41 TSW
IID Conference, Part 1 IID Conference ,Part 2 Hello, lovelies. I am a few days late for my 40th month of TSW. I can’t believe I’m writing that number. I remember thinking about when I thought 1 year would have been long enough. Now I am close to 3.5 years. I still get that question… Continue reading 40 Months TSW
Sorry for the late post. Been super busy with life! A little too busy sometimes, but trying to be semi normal with a hint of madness — particularly with the documentary. There is lots to get done, but I think I can finish it by my estimated time frame — mid June! As for my… Continue reading TSW 37 Months
Tomorrow is Christmas, so I wanted to be a day early. It will be a packed celebratory time with family and friends tomorrow (which I hope I make it through!). Lots of driving, gifts, and hugs to be had. My energy, especially since beginning a work out regimen at the beginning of December, has actually… Continue reading 35 Months TSW
I didn’t exactly start off on the right foot this TSW month. Well, not totally true. I had my birthday, which was lovingly spent with family and my Royal comrades. I enjoyed a Halloween party as well, which was nice since I spent time and energy on my costume. I always wanted to be LeeLoo… Continue reading 34 Months TSW
Usually around Thanksgiving we reflect on our surroundings, our decisions, and what we have taken for granted in our lives that deserve recognition. Or is that just me??… And I usually shine a light on my phenomenal inner circle of friends and on my family who has gone above and beyond these past few years.… Continue reading THANKFUL TO ITSAN
What a month. I feel so exhausted. I am desperately trying to raise money and find ideas for fundraisers with my Red Skin Syndrome Documentary (Preventable: Protecting Our Largest Organ), while also trying to stay motivated through personal struggles. Add Topical Steroid Withdrawal issues, and you’ve got the perfect tri-fecta. I post a lot of… Continue reading 25 Months Topical Steroid Withdrawal
To all my warriors and skin condition sufferers, As you may or may not know, I have been working on a documentary endeavor since October 1st regarding Red Skin Syndrome and the need to disseminate the extremely important information about the dangers of chronic steroid use. Strides have been made, yet it is nowhere near… Continue reading Call To Arms
Found in Reverie 