I have hit the 18 month mark. It still wows me. I get excited about these landmarks, not because I’m happy that I’ve been going through this for so long, but because of how proud I am that I have not given up the fight against this condition and the man! I will never give up spreading awareness and I will never bow out once I am fully healed.
I am actually in the works of putting together the beginning trails of a documentary. I am determined to get the word out. Be on the lookout in the next two months for a trailer. The funding stage will begin after that which is nerve-racking but super exciting!!! I believe in this so much and the need for not only reform in how topical steroids are used is something we desperately need, but proper education in this area needs to be addressed.
Any who, stay tuned for that! As for now, I’ve been a bit of an itch fest. I went and got my skin swabbed (yea for waiting over 2 hours in the waiting room WITH an appointment) and I do have a staph infection. It’s mostly my wrists, elbow area and chest. Everyone usually has staph on their skin, but because of my condition, it affects me greatly. I probably picked it up at the airport flying back from England. Public places are the usual culprits. Hoping this dose of antibiotics will help. I hate taking antibiotics but I don’t have a bath right now so I can’t soak in apple cider vinegar and epsom salt, but I will once I am back home. Only take antibiotics when absolutely necessary!! If no swab is done, don’t take it (unless it is blatantly clear you have MRSA and will die if you don’t). That is my opinion seeing how antibiotics are being handed out like candy and now we are having a huge problem with immunity to different antibiotics because of overuse.
Here are some pictures from this past month xo
To any sufferers reading, I know this is tough. I know this isn’t a breeze, and the fact that it can last for so long (plus unexpected flares) can be a huge boost in anxiety. Just know you aren’t alone. Know that your suffering doesn’t have to go in vain. If we all work together to raise awareness and use our stories as a collective, we can make a huge difference in the lives of future TS users. No one should have to suffer like we have. It’s unjust and abominable to have a 4 decade history of this without any reform. So lets shed some light on this subject and do it with facts, professionally and empathetically. We are all angry (I totally get it, we feel our doctors should be held accountable), but anger will get us nowhere. Instead, use that passion to gather as much research as you can and spread it around to local doctors xo We can be the change. We can be the hero of our own stories.
Love, B. R. Wren