When it comes to living with Red Skin Syndrome, going through withdrawal can be the most exhausting, unpredictable journey. You are not in control. You have taken the backseat and bravely allowed the withdrawal process to steer blindly towards that ever distant light you wish to reach. I am in month 14 of this process,… Continue reading It’s Not About the Good Days
As many know, I am not the only one who is suffering from Red Skin Syndrome and Topical Steroid Withdrawal. Beth, a wonderful human being, decided to share her story with me. However, it is very unique. She has never used topical steroids frequently, but has been on oral steroids for a long time. Check… Continue reading A RSS Interview 2016 (I)
Hey guys, So I am feeling SO much better after that ER visit at the end of December. I finished up the antibiotics and started to get some of my energy back. My skin has it’s trouble spots still, but overall, I’m trying to start stretching and doing (very) light exercising. Slow and steady, especially… Continue reading 12.5 Months TSW
I’m tired. I’m exhausted from all this. But, that’s life. This condition doesn’t give you a vacation. And it’s hard to explain that to people. It’s so slow to heal, slow like the line you wait in at the DMV to get your name changed. I’ve yet to do that — get my name changed.… Continue reading 11.5 months TSW (Topical Steroid Withdrawal)
“We really have two options in life. We can either decide to feel sorry for ourselves and throw the biggest pity party in the world and just be stuck in it — or there’s this whole other side with everything that we do have in our lives.” Day 4: Lizzie Velasquez This extremely brave women… Continue reading Her Brave Heart
I’ve passed the 300 day mark (310)! Not really exciting in general, but to see how far I’ve come is pretty mind-blowing. It’s been a long journey with some road still ahead, but it feels much easier to track now. Knock on wood I don’t regress. I am STILL waiting for my MRSA swab results.… Continue reading 10 MONTHS TSW
7 MONTHS OF T.S.W. To state I am in hell is an understatement. I am now 7 months into TSW and 2 weeks into Moisture Withdrawal. My body HATES this. I see a slight improvement on 2 or 3 spots on my face where ooze was much more prevalent 2 weeks ago, but other than… Continue reading 7 Months (2 Weeks Moisture Withdrawal)
Unreal! 6 months! I told my husband I wanted to get food and celebrate, but what a strange thing to celebrate?… I don’t really want to celebrate that I’ve been going through hell for 6 months and have no end in sight, but, I do want to celebrate my resolve. I can’t believe I’ve lasted… Continue reading WooHoo 6 Months
At this point in time, I don’t see much progress. I’m at a slight stand still. It’s tiring, but I just have to keep going. Topical Steroid Withdrawal gives you no rest. She is a relentless bi-atch. And, I ask anyone reading this (who isn’t going through TSW), to take charge of your health. Don’t… Continue reading 5.5 Months of the Merry Go Round
Wrote this a long time ago. But, it feels pretty present. Wings Like Eagles – May 2, 2011 Sometimes things happen in your life that you can’t control, no matter how hard you try. Sometimes you have to get going even when the going is tough. Sometimes you have to hit the floor in order… Continue reading Girl on Fire
Found in Reverie 