To all my warriors and skin condition sufferers, As you may or may not know, I have been working on a documentary endeavor since October 1st regarding Red Skin Syndrome and the need to disseminate the extremely important information about the dangers of chronic steroid use. Strides have been made, yet it is nowhere near… Continue reading Call To Arms
Hey loves! I wanted to put a post together where you could locate all 3 of my ITSAN videos. We spent 3 days in Washington, D.C. this past September 2016. I was a patient advocate and tried my darnedest to keep up with the medical jargon and terms being thrown around. I hope these videos… Continue reading Washington, D.C. Videos
I decided, for the first time ever, to write a note to a PA and leave it at their facility. I have seen this man (who is NOT a doctor, just a physicians assistant — which I was not aware of–) twice for two different problems. Both times I was extremely dissatisfied with his care. I… Continue reading Assembly Line Care
Yesterday, my time line reminded me how far I have come in this withdrawal battle. I think it still boggles minds when talking about a withdrawal that can last years at a time, literally. I’m at 15 months and 19 days. That is 476 days. That is 685, 440 minutes. And I’m not even finished… Continue reading What a Year Looks Like
It is becoming a world wide epidemic: Abusing steroids needs to end. Dr. Lahiri (based in India) has been making strides in this area. He is very open with the fact that steroids can be a saving grace/necessary to the medical community as much as they can be one of the most harmful drugs if… Continue reading Raising Awareness for Steroid Abuse
I know your pain. I know exactly where it hurts, deep down as well as superficially. It’s everywhere, under and over, and in-between. There doesn’t seem to be an escape. We search for ways to explain this hurt, this unyielding, overpowering suffocation that is Topical Steroid Withdrawal. It’s usually to no avail. The dictionary just… Continue reading A Letter to the Suffering (TSW)
This post is coming almost 10 days late. I wish it was because I was partying so hard that I just didn’t have time to sit down and write about my 11th month of this condition, but unfortunately that’s not the case. December 14th, I left for Toronto to see my husband and to spend… Continue reading 11 Months of TSW (Topical Steroid Withdrawal)
This recap may be a bit rushed this two weeks. So much going on! I went down south for Thanksgiving to be with my family, then started a cleanse, and now am about to be gone for 2 weeks in Canada to see my husband (who I have not seen in 3 months!). First, the… Continue reading TSW 10.5 Months
I’ve passed the 300 day mark (310)! Not really exciting in general, but to see how far I’ve come is pretty mind-blowing. It’s been a long journey with some road still ahead, but it feels much easier to track now. Knock on wood I don’t regress. I am STILL waiting for my MRSA swab results.… Continue reading 10 MONTHS TSW
And the itch goes on… 9.5 months. It’s been annoying, to say the least. I am living at my mother’s house, my husband is away being a bad ass, my dance friends are shoulder rolling on different stages, and life seems to be flowing as normal all around me as I sit and wait… and… Continue reading 9.5 Months
Found in Reverie 