I can’t believe it’s been 4 months. I don’t know how people can live with this for YEARS. Four months is already torture enough. Since shaving my head, I have been trying to get the dryness down. Not going as fast as I had hoped, but I am doing the best I… Continue reading 4 flippin’ flaky months!
Another update! My body is definitely changing in and out of stages. Hopefully for the better!! However, 3 days ago, May 13th, 2015, I did the unthinkable. I chopped off all of my hair. Now, that doesn’t seem very epic to some people. To be honest, it shouldn’t be. However, I had VERY LONG hair. I… Continue reading TSW: V for Vendetta (3.5 Mark)
April 25th, 2015 marked 3 months of my TSW journey. It’s been quite a ride, one that I do wish would end. Progress: or lack their of… After debarking the cruise, I hoped my face would stay the same. Something about the cruise ship air made my skin a bit more bearable. However, since I’ve… Continue reading A Full 3 Months
I’m Back!!! I was gone from April 4th till April 18th aboard the Oasis of the Seas. This was not for a vacation, but to work. I was on nighttime rehearsals (from 12am to 8am) helping to install a Royal Caribbean show. To be honest, I was petrified that my skin would go crazy, that… Continue reading Cruise Life — TSW Days (70-83)
** Disclaimer – these photos are very graphic ** My 2nd month of TSW is coming to a close. Can not believe it has only been 6o days (56 to be exact). It feels like a lifetime longer. On the field, we have four major players (in order of torture): Ooze, dry skin, itch, burn… Continue reading Bottom of the Barrel – Month 2 TSW
“I saw that my life was a vast glowing empty page and I could do anything I wanted.” – Jack Kerouac Too many of us, from the get go, only relish the glowing empty page when we are greeted with opportunity, pure happiness, or moments of revelation. When a tiny gust of annoyance blows down our… Continue reading Cherish The Garbage
I am mid way through Month 2 of my Topical Steroid Withdrawal. It has been a roller coaster of things: flakes, hot red skin, ooze, lethargy, baths baths baths, itching, death of my social interaction, biopsies, ultrasound, and lots of vacuuming Medically: I am fluctuating on the low blood pressure scale. It’s been better these past… Continue reading TSW Month 2
I felt another one hit wonder coming on. This is for my TSW friends. (and others!) *sung to the tune of Taylor Swift’s new song ‘Style’ Midnight, Eyes wide open feel so sleep deprived Skin tight, Could end in an itching fit, am I alive? Fade into view, oh, the mirror casts an image thats… Continue reading Sing Along Song
Here is some progress from February 24th to yesterday, March 1st. I know there are many of you TSW sufferers who are just starting out and feel lost, but don’t worry, we’ve all been there! Times are tough (and that image in the mirror can get ya down) but you’ve got this!! It’s so pufffffffffyyyyy!… Continue reading My Own Snowglobe
Found in Reverie 