It has been officially one week since my stem cell infusions. I had one into my hip, and one into my arm. My hip is still a bit sore. I wasn’t anticipating this, but I am a dance teacher and do have to move around a lot. I am trying my best to not jump… Continue reading Week 1 Update (Stem Cells)
4 years. 209 weeks. 1,462 days. of loss. of confusion. of fear. of battle scars. of thunderous, terrifying purpose. Looking back to Day 1, when hopes were high and knowledge was scarce, it is miraculous to see how far this journey has taken me. I am not the same person. Sometimes that makes me sad… Continue reading 4 Years
“Miss, are you you sick?” “Yes, I am.” “I can tell because your neck is red.” I didn’t have the energy or, quite frankly, composure to tell an 11-year-old student that my obnoxious cold has nothing to do with why I’m a red, blotchy disaster. At 44 months T.S.W. and succumbing to the plague that… Continue reading The Threadless Labyrinth
I’ve had cabin fever for months now. Every so often, I get to venture out, but for the most part, I was secluded in my home working on the documentary (I’ll make an update video soon). I was looking forward to getting back into my old job of subbing — not because it’s my passion,… Continue reading Use Warm Water
I am a little late, but for good reason. I have been working very hard on the documentary and have found little time for other things. I did however get to take one full day off this Sunday (after working 1.5 weeks STRAIGHT, no weekend for me) and I went to Disney World!! It was… Continue reading Month 41 TSW
IID Conference, Part 1 IID Conference ,Part 2 Hello, lovelies. I am a few days late for my 40th month of TSW. I can’t believe I’m writing that number. I remember thinking about when I thought 1 year would have been long enough. Now I am close to 3.5 years. I still get that question… Continue reading 40 Months TSW
Amidst editing and trudging through all the hurdles with the documentary, I have been thinking about analogies concerning Topical Steroid Withdrawal. We are always having to try and explain, or make known, or express how frustrating this condition is in our lives. Especially with doctors, it never seems to gain stride as to how UNBEARABLE… Continue reading Willy Wonka
Hey loves, What a month it has been. Whenever I take a dive with my skin, it also effects my emotions. Once I had gotten back from the cruise ship, I got hit with a few scenarios and situations that gave me a load of anxiety (I am still trying to shake it). One major… Continue reading 39 Months TSW
Hello loves, So sorry this is a week late. I was on a cruise ship working and didn’t have time to update. Not much has changed, unfortunately since last month. My worst spots are my arms, neck, and spots on my face. Redness and dryness are my biggest issues. I should be thankful it’s not… Continue reading 38 Months TSW
Sorry for the late post. Been super busy with life! A little too busy sometimes, but trying to be semi normal with a hint of madness — particularly with the documentary. There is lots to get done, but I think I can finish it by my estimated time frame — mid June! As for my… Continue reading TSW 37 Months
