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Found in Reverie

Memoirs of a little bird

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Category: TSW

TSW

Week 4 + 5 (Stem Cell)

March 3, 2019March 3, 2019 brianarachelle233 Comments

The weeks have been blurred and have been running by so quickly because of work. I am putting both week 4 + 5 together. My hip does not hurt as much anymore, but I am still careful of how much I am doing to it. I am slowly starting to rehab it into being back… Continue reading Week 4 + 5 (Stem Cell)

TSW

Week 3 (Stem Cells)

February 21, 2019February 21, 2019 brianarachelle23Leave a comment

This is super late, my apologies, but life has been hectic. I am 3.5 weeks out of having the stem cell infusions at the IMAC center in St. Louis. I have still not seen any progress in my skin. It’s discouraging, but that’s how it goes. Perhaps that means I could have an internal issue… Continue reading Week 3 (Stem Cells)

TSW

Week 2 Update (Stem cells)

February 11, 2019February 11, 2019 brianarachelle231 Comment

It has been 2 weeks now since my stem cell infusion into my hip and arm. My hip is still sadly sore. I haven’t been able to rest it a lot in the sense of not moving around a lot since I do teach dance at school, but I have been mindful of not doing… Continue reading Week 2 Update (Stem cells)

TSW

Week 1 Update (Stem Cells)

February 2, 2019February 2, 2019 brianarachelle23Leave a comment

It has been officially one week since my stem cell infusions. I had one into my hip, and one into my arm. My hip is still a bit sore. I wasn’t anticipating this, but I am a dance teacher and do have to move around a lot. I am trying my best to not jump… Continue reading Week 1 Update (Stem Cells)

4 Years
TSW

4 Years

January 25, 2019January 25, 2019 brianarachelle232 Comments

4 years. 209 weeks. 1,462 days. of loss. of confusion. of fear. of battle scars. of thunderous, terrifying purpose. Looking back to Day 1, when hopes were high and knowledge was scarce, it is miraculous to see how far this journey has taken me. I am not the same person. Sometimes that makes me sad… Continue reading 4 Years

The Threadless Labyrinth
Bird Scribble · TSW

The Threadless Labyrinth

October 6, 2018October 6, 2018 brianarachelle237 Comments

“Miss, are you you sick?” “Yes, I am.” “I can tell because your neck is red.” I didn’t have the energy or, quite frankly, composure to tell an 11-year-old student that my obnoxious cold has nothing to do with why I’m a red, blotchy disaster. At 44 months T.S.W. and succumbing to the plague that… Continue reading The Threadless Labyrinth

Bird Scribble · TSW

Use Warm Water

September 18, 2018September 18, 2018 brianarachelle236 Comments

I’ve had cabin fever for months now. Every so often, I get to venture out, but for the most part, I was secluded in my home working on the documentary (I’ll make an update video soon). I was looking forward to getting back into my old job of subbing — not because it’s my passion,… Continue reading Use Warm Water

TSW

Month 41 TSW

June 27, 2018 brianarachelle232 Comments

I am a little late, but for good reason. I have been working very hard on the documentary  and have found little time for other things. I did however get to take one full day off this Sunday (after working 1.5 weeks STRAIGHT, no weekend for me) and I went to Disney World!! It was… Continue reading Month 41 TSW

TSW

40 Months TSW

May 27, 2018May 27, 2018 brianarachelle232 Comments

IID Conference, Part 1 IID Conference ,Part 2 Hello, lovelies. I am a few days late for my 40th month of TSW. I can’t believe I’m writing that number. I remember thinking about when I thought 1 year would have been long enough. Now I am close to 3.5 years. I still get that question… Continue reading 40 Months TSW

Bird Scribble · TSW

Willy Wonka

May 9, 2018May 9, 2018 brianarachelle23Leave a comment

Amidst editing and trudging through all the hurdles with the documentary, I have been thinking about analogies concerning Topical Steroid Withdrawal. We are always having to try and explain, or make known, or express how frustrating this condition is in our lives. Especially with doctors, it never seems to gain stride as to how UNBEARABLE… Continue reading Willy Wonka

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Although this flare hasn't calmed down much, I feel a little spark in my soul. I am tired, but not timid. I am dismantled, but not demolished.
I was truly hoping things would start making a better turn, but I only seem to be getting worse. Yesterday my eyes were a bit swollen, and now I'm just in a full red faced flare. I have work tomorrow, still highly dependent on people because my leg can't bare weight, and my skin is on fire. Sadly, just exhausted. Going to try and rest as much as possible today. Praying the universe gives me a break.
Little update:🦿🦴

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