Big things in the works guys, sorry I have not been very active making videos and writing blogs but there will be PLENTY of them soon!! I am working on a website (hoping to post it publicly October 1st!) about my documentary endeavor to raise awareness about Red Skin Syndrome and the prevention that needs… Continue reading 20 Months TSW
I decided, for the first time ever, to write a note to a PA and leave it at their facility. I have seen this man (who is NOT a doctor, just a physicians assistant — which I was not aware of–) twice for two different problems. Both times I was extremely dissatisfied with his care. I… Continue reading Assembly Line Care
Hello all, Just another update. There isn’t much to tell, skin wise. My hands and elbow area are the most stagnant. My neck, face, and stomach have a few issues that fluctuate. The itch is still present and I had acrylic nails put on to help. Today, I am embarking on an experiment. It will… Continue reading 19 Months TSW
I have hit the 18 month mark. It still wows me. I get excited about these landmarks, not because I’m happy that I’ve been going through this for so long, but because of how proud I am that I have not given up the fight against this condition and the man! I will never give… Continue reading 1.5 Years of TSW
Almost a full 1.5 years into this withdrawal. So strange to think how far I have come. I am still healing but in a much better place. It’s a bit stagnant now, but I’ll take that over a roller coaster. In my first few months, this was me… Unreal to look at. And, to be… Continue reading 17 Months TSW
Nothing could have prepared me for yesterday. In all my 16 months of withdrawing, I had yet to meet another sufferer like myself. I have spoken to many online, sharing our stories and our journey through this nightmare, but never once had I met someone face to face. That’s not to say the offer has… Continue reading My First Encounter
May 25th! Today marks 16 months for me going through Topical Steroid Withdrawal. I am writing to you from England which makes this even more exciting! I will be here for a while visiting my in-laws. Jack and I haven’t been here since June 2014. Much overdo! Like most Red Skin Warriors, change is not… Continue reading 16 Months TSW
Yesterday, my time line reminded me how far I have come in this withdrawal battle. I think it still boggles minds when talking about a withdrawal that can last years at a time, literally. I’m at 15 months and 19 days. That is 476 days. That is 685, 440 minutes. And I’m not even finished… Continue reading What a Year Looks Like
Hey guys! Sorry, I am a bit late with this post. I was on a cruise (woot!) so I was not near wi-fi. Can you believe it? I went on a Caribbean cruise, in the sun, all day! Well, I was covered up from head to toe (with a lovely flappy hat), but a year… Continue reading 15 Months TSW (Red Skin Syndrome)
When it comes to living with Red Skin Syndrome, going through withdrawal can be the most exhausting, unpredictable journey. You are not in control. You have taken the backseat and bravely allowed the withdrawal process to steer blindly towards that ever distant light you wish to reach. I am in month 14 of this process,… Continue reading It’s Not About the Good Days
Found in Reverie 