Time is flying! Strangely, I have become a bit used to this limbo way of life. I’m in between getting better, but not enough to be back to normal. Annoying, right? However, after the crappy cold I had this week (Sunday- Wednesday), I felt a huge surge of energy. I cleaned the entire house, even… Continue reading IV. V Months
Another update! My body is definitely changing in and out of stages. Hopefully for the better!! However, 3 days ago, May 13th, 2015, I did the unthinkable. I chopped off all of my hair. Now, that doesn’t seem very epic to some people. To be honest, it shouldn’t be. However, I had VERY LONG hair. I… Continue reading TSW: V for Vendetta (3.5 Mark)
Before I leave for two weeks on a work trip (yup, cross your fingers for me!), I wanted to post my progress. From an oozing standpoint, it’s still been a struggle. However, I now have Sudocrem that I wrap up with for my arms and legs. I’ll put it on my face as well if… Continue reading TSW Days 55-66
** Disclaimer – these photos are very graphic ** My 2nd month of TSW is coming to a close. Can not believe it has only been 6o days (56 to be exact). It feels like a lifetime longer. On the field, we have four major players (in order of torture): Ooze, dry skin, itch, burn… Continue reading Bottom of the Barrel – Month 2 TSW
I am mid way through Month 2 of my Topical Steroid Withdrawal. It has been a roller coaster of things: flakes, hot red skin, ooze, lethargy, baths baths baths, itching, death of my social interaction, biopsies, ultrasound, and lots of vacuuming Medically: I am fluctuating on the low blood pressure scale. It’s been better these past… Continue reading TSW Month 2
I felt another one hit wonder coming on. This is for my TSW friends. (and others!) *sung to the tune of Taylor Swift’s new song ‘Style’ Midnight, Eyes wide open feel so sleep deprived Skin tight, Could end in an itching fit, am I alive? Fade into view, oh, the mirror casts an image thats… Continue reading Sing Along Song
Here is some progress from February 24th to yesterday, March 1st. I know there are many of you TSW sufferers who are just starting out and feel lost, but don’t worry, we’ve all been there! Times are tough (and that image in the mirror can get ya down) but you’ve got this!! It’s so pufffffffffyyyyy!… Continue reading My Own Snowglobe
I’ve been on medication for 3 days now. Seeing mild improvement. It’s there, but it’s so hard to see how slowly this process is actually going to take. I’ve had problems with my skin for over two decades. These past three years have been the worst with my adult dermatitis. However, I am doing lots… Continue reading Cooties?
Found in Reverie 