Oh my goodness, it’s been a whirlwind of a month! I got back from the documentary shoot on July 29th. A rest from the summer was EXTREMELY needed. I stayed at my mother’s house for about 5 days (she was away so I had it all to myself). I just rested, watched movies, and tried… Continue reading 31 Months TSW
What a month. I feel so exhausted. I am desperately trying to raise money and find ideas for fundraisers with my Red Skin Syndrome Documentary (Preventable: Protecting Our Largest Organ), while also trying to stay motivated through personal struggles. Add Topical Steroid Withdrawal issues, and you’ve got the perfect tri-fecta. I post a lot of… Continue reading 25 Months Topical Steroid Withdrawal
On January 25th, I hit the 2 year mark! Not giving up! When I look in the mirror, I still see everything that is wrong — My face is extremely dry (hence all the skin on my shirt in the picture), I have a red mustache and a red, dry patch in-between me eyebrows, my… Continue reading 2 Years TSW!!!
Hello loves, sorry I am late. But, it’s my birthday!!! Yea! 28 years of being on this earth. I have been SUPER busy this month with the launch of my new website. Check her out! Preventable: Protecting Our Largest Organ Until Nov. 5th (ending soon!!) I will be hosting a fundraiser online for t-shirt sales… Continue reading 21 Months
This past weekend, I had the amazing privilege to meet Meghan and Theo Rossi during their Go Get It LIFE event in Staten Island, October 15th Over a year ago, they featured my story about battling Red Skin Syndrome. I have been following their site since then and am amazed at how many lives they have… Continue reading 5K Go Get It LIFE NYC
Hey loves. A lot has been going on, but I wanted to put out my first video from Washington DC on the September 11th weekend. I do apologize for the audio. I have the case on my GoPro camera so that sound gets muffled. I did my best. It’s not my best video, but I… Continue reading WASHINGTON DC #1
Big things in the works guys, sorry I have not been very active making videos and writing blogs but there will be PLENTY of them soon!! I am working on a website (hoping to post it publicly October 1st!) about my documentary endeavor to raise awareness about Red Skin Syndrome and the prevention that needs… Continue reading 20 Months TSW
Hello all x I know I usually post every two weeks about my progress but I didn’t feel there was much change in my skin. I am now in the truly limbo area of my withdrawal. I was a performer before this happened and am now trying to get back into that performer shape, though… Continue reading 14 Months TSW (Topical Steroid Withdrawal)
Found in Reverie 