What a month. I feel so exhausted. I am desperately trying to raise money and find ideas for fundraisers with my Red Skin Syndrome Documentary (Preventable: Protecting Our Largest Organ), while also trying to stay motivated through personal struggles. Add Topical Steroid Withdrawal issues, and you’ve got the perfect tri-fecta. I post a lot of… Continue reading 25 Months Topical Steroid Withdrawal
Lately, I have been taking bike rides. At first they were just in the neighborhood. I didn’t really have a destination or purpose except to listen to the music in my headphones and peddle faster than my problems in hopes I could leave them behind for those 20 minutes. Then came the day I ventured… Continue reading The Castle On The Hill
“Life can change in an instant.” We have all heard this phrase. But sometimes we really forget what it means, how important those words are in our daily lives. These past few days I have been heavily reminded that life truly has the ability to change in just the snap of a finger. Nothing is… Continue reading We Aren’t Promised Tomorrow
On January 25th, I hit the 2 year mark! Not giving up! When I look in the mirror, I still see everything that is wrong — My face is extremely dry (hence all the skin on my shirt in the picture), I have a red mustache and a red, dry patch in-between me eyebrows, my… Continue reading 2 Years TSW!!!
Often times, when we are faced with pain, we don’t realize what a priceless opportunity we have in front of us. Happiness is what we strive for, the emotion of which we wish to constantly embody. But, if happiness is all we were to ever know, how do we know that we are happy? How do we… Continue reading What She Is Teaching Me
Yesterday, I went into my attorney’s office to sign divorce papers. It was a complete out of body experience. It was as if it wasn’t me doing it. Someone else was because I couldn’t possibly be the one getting divorced. We are only two years in. My marriage isn’t over. My husband doesn’t have a girlfriend.… Continue reading On the Dotted Line
To all my warriors and skin condition sufferers, As you may or may not know, I have been working on a documentary endeavor since October 1st regarding Red Skin Syndrome and the need to disseminate the extremely important information about the dangers of chronic steroid use. Strides have been made, yet it is nowhere near… Continue reading Call To Arms
It’s been awhile since I’ve posted a TSW update. I apologize. December 25th was my 23 month mark and my life has been upside down. I’ve lost track of the days. Staring at the calendar, I can’t believe it’s January 14th already. So, I wanted to post an update before my actual 2 year mark… Continue reading Almost 2 Years
It’s been 3 weeks since I have heard the sound of your voice. I am torn. I stay away as preservation. I wish for nothing but to speak to you, yet the second I hear a word from your lips, I fear I will lose resolve and fall weak at the knees. Sometimes, we have to do what… Continue reading Preservation
I have a window that acts as a portal. I live on the 2nd story of my uncle’s home. Outside of my window is where I go to recharge and forget about whatever is ailing me or troubling my mind. As part of my 2017 vision, I told myself I needed to continue going outside… Continue reading Where the Rooftop Ends
Found in Reverie 