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Found in Reverie

Memoirs of a little bird

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Tag: eczema

Listen Up · TSW

Inevitably

January 25, 2020January 25, 2020 brianarachelle235 Comments

Today marks my 5 year anniversary of starting Topical Steroid Withdrawal. To think I’ve carried this around for half a decade is mind boggling, but as a friend once told me, “perhaps you were born for such a time as this (Esther 4:14).” I’ve always wanted to believe that. And if I am meant to… Continue reading Inevitably

20/20 in 2020
TSW

20/20 in 2020

January 3, 2020 brianarachelle232 Comments

My fingers have been itching to sit at this laptop and configure words that may possibly, eventually, make something of all the clatter and noise inside my head. I’ve been thinking about the Topical Steroid Withdrawal community a lot. For two, really two and a half years, I had toiled over a documentary that I… Continue reading 20/20 in 2020

The One Worth Knowing
Bird Scribble

The One Worth Knowing

October 4, 2019October 5, 2019 brianarachelle232 Comments

This month is Eczema Awareness Month. Years ago I never would have believed such a thing existed. Who needs awareness about eczema? Having lived with TSW, Topical Steroid Withdrawal, for over 4.5 years now, my view has drastically changed. Millions of people are stricken with eczema and there is such a large stigma around it.… Continue reading The One Worth Knowing

Help ITSAN
Listen Up · TSW

Help ITSAN

March 16, 2019 brianarachelle23Leave a comment

This is an important letter written by ITSAN. They need your help. We would be nowhere without this nonprofit. The Future of ITSAN is at Risk for 2019! Dear TSW family, We at ITSAN have been working really hard this past year to break through the resistance to TSW in the medical community – to… Continue reading Help ITSAN

TSW

Week 4 + 5 (Stem Cell)

March 3, 2019March 3, 2019 brianarachelle233 Comments

The weeks have been blurred and have been running by so quickly because of work. I am putting both week 4 + 5 together. My hip does not hurt as much anymore, but I am still careful of how much I am doing to it. I am slowly starting to rehab it into being back… Continue reading Week 4 + 5 (Stem Cell)

TSW

Week 3 (Stem Cells)

February 21, 2019February 21, 2019 brianarachelle23Leave a comment

This is super late, my apologies, but life has been hectic. I am 3.5 weeks out of having the stem cell infusions at the IMAC center in St. Louis. I have still not seen any progress in my skin. It’s discouraging, but that’s how it goes. Perhaps that means I could have an internal issue… Continue reading Week 3 (Stem Cells)

TSW

Week 2 Update (Stem cells)

February 11, 2019February 11, 2019 brianarachelle231 Comment

It has been 2 weeks now since my stem cell infusion into my hip and arm. My hip is still sadly sore. I haven’t been able to rest it a lot in the sense of not moving around a lot since I do teach dance at school, but I have been mindful of not doing… Continue reading Week 2 Update (Stem cells)

TSW

Week 1 Update (Stem Cells)

February 2, 2019February 2, 2019 brianarachelle23Leave a comment

It has been officially one week since my stem cell infusions. I had one into my hip, and one into my arm. My hip is still a bit sore. I wasn’t anticipating this, but I am a dance teacher and do have to move around a lot. I am trying my best to not jump… Continue reading Week 1 Update (Stem Cells)

4 Years
TSW

4 Years

January 25, 2019January 25, 2019 brianarachelle232 Comments

4 years. 209 weeks. 1,462 days. of loss. of confusion. of fear. of battle scars. of thunderous, terrifying purpose. Looking back to Day 1, when hopes were high and knowledge was scarce, it is miraculous to see how far this journey has taken me. I am not the same person. Sometimes that makes me sad… Continue reading 4 Years

TSW

Month 41 TSW

June 27, 2018 brianarachelle232 Comments

I am a little late, but for good reason. I have been working very hard on the documentary  and have found little time for other things. I did however get to take one full day off this Sunday (after working 1.5 weeks STRAIGHT, no weekend for me) and I went to Disney World!! It was… Continue reading Month 41 TSW

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