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Found in Reverie

Memoirs of a little bird

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Tag: red skin syndrome

Help ITSAN
Listen Up · TSW

Help ITSAN

March 16, 2019 brianarachelle23Leave a comment

This is an important letter written by ITSAN. They need your help. We would be nowhere without this nonprofit. The Future of ITSAN is at Risk for 2019! Dear TSW family, We at ITSAN have been working really hard this past year to break through the resistance to TSW in the medical community – to… Continue reading Help ITSAN

TSW

Week 4 + 5 (Stem Cell)

March 3, 2019March 3, 2019 brianarachelle233 Comments

The weeks have been blurred and have been running by so quickly because of work. I am putting both week 4 + 5 together. My hip does not hurt as much anymore, but I am still careful of how much I am doing to it. I am slowly starting to rehab it into being back… Continue reading Week 4 + 5 (Stem Cell)

TSW

Week 3 (Stem Cells)

February 21, 2019February 21, 2019 brianarachelle23Leave a comment

This is super late, my apologies, but life has been hectic. I am 3.5 weeks out of having the stem cell infusions at the IMAC center in St. Louis. I have still not seen any progress in my skin. It’s discouraging, but that’s how it goes. Perhaps that means I could have an internal issue… Continue reading Week 3 (Stem Cells)

TSW

Week 2 Update (Stem cells)

February 11, 2019February 11, 2019 brianarachelle231 Comment

It has been 2 weeks now since my stem cell infusion into my hip and arm. My hip is still sadly sore. I haven’t been able to rest it a lot in the sense of not moving around a lot since I do teach dance at school, but I have been mindful of not doing… Continue reading Week 2 Update (Stem cells)

TSW

Week 1 Update (Stem Cells)

February 2, 2019February 2, 2019 brianarachelle23Leave a comment

It has been officially one week since my stem cell infusions. I had one into my hip, and one into my arm. My hip is still a bit sore. I wasn’t anticipating this, but I am a dance teacher and do have to move around a lot. I am trying my best to not jump… Continue reading Week 1 Update (Stem Cells)

4 Years
TSW

4 Years

January 25, 2019January 25, 2019 brianarachelle232 Comments

4 years. 209 weeks. 1,462 days. of loss. of confusion. of fear. of battle scars. of thunderous, terrifying purpose. Looking back to Day 1, when hopes were high and knowledge was scarce, it is miraculous to see how far this journey has taken me. I am not the same person. Sometimes that makes me sad… Continue reading 4 Years

The Threadless Labyrinth
Bird Scribble · TSW

The Threadless Labyrinth

October 6, 2018October 6, 2018 brianarachelle237 Comments

“Miss, are you you sick?” “Yes, I am.” “I can tell because your neck is red.” I didn’t have the energy or, quite frankly, composure to tell an 11-year-old student that my obnoxious cold has nothing to do with why I’m a red, blotchy disaster. At 44 months T.S.W. and succumbing to the plague that… Continue reading The Threadless Labyrinth

A Deafening Silence
Bird Scribble

A Deafening Silence

August 4, 2018August 4, 2018 brianarachelle231 Comment

Just writing this blog is such irony. The only reason I am getting to do this is because my editing software for the documentary has decided to rainbow wheel me to death, a shared death. I’ve been reassured by a few Apple geniuses that someone this coming week will be able to fix this issue.… Continue reading A Deafening Silence

TSW

40 Months TSW

May 27, 2018May 27, 2018 brianarachelle232 Comments

IID Conference, Part 1 IID Conference ,Part 2 Hello, lovelies. I am a few days late for my 40th month of TSW. I can’t believe I’m writing that number. I remember thinking about when I thought 1 year would have been long enough. Now I am close to 3.5 years. I still get that question… Continue reading 40 Months TSW

TSW

39 Months TSW

April 25, 2018April 25, 2018 brianarachelle23Leave a comment

Hey loves, What a month it has been. Whenever I take a dive with my skin, it also effects my emotions. Once I had gotten back from the cruise ship, I got hit with a few scenarios and situations that gave me a load of anxiety (I am still trying to shake it). One major… Continue reading 39 Months TSW

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