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Found in Reverie

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Tag: red skin

TSW

Almost 2 Years

January 14, 2017January 14, 2017 brianarachelle234 Comments

It’s been awhile since I’ve posted a TSW update. I apologize. December 25th was my 23 month mark and my life has been upside down. I’ve lost track of the days. Staring at the calendar, I can’t believe it’s January 14th already. So, I wanted to post an update before my actual 2 year mark… Continue reading Almost 2 Years

Celebs with Heart · Listen Up · TSW

5K Go Get It LIFE NYC

October 23, 2016October 23, 2016 brianarachelle23Leave a comment

This past weekend, I had the amazing privilege to meet Meghan and Theo Rossi during their Go Get It LIFE event in Staten Island, October 15th Over a year ago, they featured my story about battling Red Skin Syndrome. I have been following their site since then and am amazed at how many lives they have… Continue reading 5K Go Get It LIFE NYC

TSW

20 Months TSW

September 25, 2016September 25, 2016 brianarachelle231 Comment

Big things in the works guys, sorry I have not been very active making videos and writing blogs but there will be PLENTY of them soon!! I am working on a website (hoping to post it publicly October 1st!) about my documentary endeavor to raise awareness about Red Skin Syndrome and the prevention that needs… Continue reading 20 Months TSW

Listen Up

Assembly Line Care

September 6, 2016September 6, 2016 brianarachelle236 Comments

I decided, for the first time ever, to write a note to a PA and leave it at their facility. I have seen this man (who is NOT a doctor, just a physicians assistant — which I was not aware of–) twice for two different problems. Both times I was extremely dissatisfied with his care. I… Continue reading Assembly Line Care

TSW

19 Months TSW

August 25, 2016 brianarachelle23Leave a comment

Hello all, Just another update. There isn’t much to tell, skin wise. My hands and elbow area are the most stagnant. My neck, face, and stomach have a few issues that fluctuate. The itch is still present and I had acrylic nails put on to help. Today, I am embarking on an experiment. It will… Continue reading 19 Months TSW

TSW

1.5 Years of TSW

July 25, 2016July 25, 2016 brianarachelle2310 Comments

I have hit the 18 month mark. It still wows me. I get excited about these landmarks, not because I’m happy that I’ve been going through this for so long, but because of how proud I am that I have not given up the fight against this condition and the man! I will never give… Continue reading 1.5 Years of TSW

TSW

17 Months TSW

June 27, 2016July 25, 2016 brianarachelle234 Comments

Almost a full 1.5 years into this withdrawal. So strange to think how far I have come. I am still healing but in a much better place. It’s a bit stagnant now, but I’ll take that over a roller coaster. In my first few months, this was me… Unreal to look at. And, to be… Continue reading 17 Months TSW

TSW

TSW: Not a Diet Plan

June 20, 2016 brianarachelle23Leave a comment

  This is my newest Topical Steroid Withdrawal video. I hope you enjoy. Spread awareness whenever possible. Love, B. R. Wren

Listen Up · TSW

My First Encounter

May 28, 2016May 28, 2016 brianarachelle232 Comments

Nothing could have prepared me for yesterday. In all my 16 months of withdrawing, I had yet to meet another sufferer like myself. I have spoken to many online, sharing our stories and our journey through this nightmare, but never once had I met someone face to face. That’s not to say the offer has… Continue reading My First Encounter

TSW

16 Months TSW

May 26, 2016July 25, 2016 brianarachelle236 Comments

May 25th! Today marks 16 months for me going through Topical Steroid Withdrawal. I am writing to you from England which makes this even more exciting! I will be here for a while visiting my in-laws. Jack and I haven’t been here since June 2014. Much overdo! Like most Red Skin Warriors, change is not… Continue reading 16 Months TSW

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