It has been officially one week since my stem cell infusions. I had one into my hip, and one into my arm. My hip is still a bit sore. I wasn’t anticipating this, but I am a dance teacher and do have to move around a lot. I am trying my best to not jump… Continue reading Week 1 Update (Stem Cells)
Hey loves, What a month it has been. Whenever I take a dive with my skin, it also effects my emotions. Once I had gotten back from the cruise ship, I got hit with a few scenarios and situations that gave me a load of anxiety (I am still trying to shake it). One major… Continue reading 39 Months TSW
Oh my goodness, it’s been a whirlwind of a month! I got back from the documentary shoot on July 29th. A rest from the summer was EXTREMELY needed. I stayed at my mother’s house for about 5 days (she was away so I had it all to myself). I just rested, watched movies, and tried… Continue reading 31 Months TSW
Hey loves, Sorry this is 2 days late. Things have been all over the place with getting ready for the documentary. I am still fundraising and need just about 2k more to have everything I need paid for (for production purposes). We can worry about editing funding later. I’m super nervous/excited/psyched to have this opportunity.… Continue reading 27 Months TSW (Topical Steroid Withdrawal)
What a month. I feel so exhausted. I am desperately trying to raise money and find ideas for fundraisers with my Red Skin Syndrome Documentary (Preventable: Protecting Our Largest Organ), while also trying to stay motivated through personal struggles. Add Topical Steroid Withdrawal issues, and you’ve got the perfect tri-fecta. I post a lot of… Continue reading 25 Months Topical Steroid Withdrawal
On January 25th, I hit the 2 year mark! Not giving up! When I look in the mirror, I still see everything that is wrong — My face is extremely dry (hence all the skin on my shirt in the picture), I have a red mustache and a red, dry patch in-between me eyebrows, my… Continue reading 2 Years TSW!!!
It’s been awhile since I’ve posted a TSW update. I apologize. December 25th was my 23 month mark and my life has been upside down. I’ve lost track of the days. Staring at the calendar, I can’t believe it’s January 14th already. So, I wanted to post an update before my actual 2 year mark… Continue reading Almost 2 Years
Every time I go to write one of my blogs, it still makes me think, “Wow… another month has gone by and I’m still not healed.” It sucks, it truly does, but here we are at 22 months without any steroids. I have definitely had a lot of stress these past two months and have… Continue reading 22 Months TSW
This post is coming almost 10 days late. I wish it was because I was partying so hard that I just didn’t have time to sit down and write about my 11th month of this condition, but unfortunately that’s not the case. December 14th, I left for Toronto to see my husband and to spend… Continue reading 11 Months of TSW (Topical Steroid Withdrawal)
Found in Reverie 