There are times, more and more as the days pass, that I wish I was better. Not only for myself, but for public acknowledgment that this truly exists. I am one week shy of being home from shooting the documentary, Preventable: Protecting Our Largest Organ, and it would have been so much grander to do… Continue reading 2.5 Years TSW
I apologize in advance for the brief update. I am out on Day 20 now shooting the documentary, Preventable: Protecting Our Largest Organ. I must be clinically insane to have done this, but it has been magical so far, as well as exhausting. Want to follow along with my documentary journey? Here is how you… Continue reading 29 Months TSW
Forgive me, my posts are becoming later and later since my schedule is super swamped with the documentary production starting only ONE WEEK away! If anyone is interested in tracking my while I shoot (or would like to know about it in general) here is the website: PREVENTABLE WEBSITE You can also follow me on… Continue reading 28 Months
“The hardest part of saying goodbye is having to do it again every single day. Everyday we face the same truth, the fact that life is fleeting. That our time here is short.” – OTH It’s as if I am stuck in a time warp, some twilight zone or awakening from a 2 year coma.… Continue reading Empty Nest
Hey loves, Sorry this is 2 days late. Things have been all over the place with getting ready for the documentary. I am still fundraising and need just about 2k more to have everything I need paid for (for production purposes). We can worry about editing funding later. I’m super nervous/excited/psyched to have this opportunity.… Continue reading 27 Months TSW (Topical Steroid Withdrawal)
There has been a lot on my heart and mind, weighing it down like a boulder tied to a drowning woman’s ankles. No matter how hard you paddle, the weight is still there. You try so hard to let it go, and some days you think you’ve tackled it, figured it out, and yet the… Continue reading The Scars Beneath
Hey everyone, I don’t know if it’s just me and my own personal traumas going on, but these past 3 months have been such a blur. It’s almost April and I’m a bit confused since it was just Christmas… right? So much has been going on, especially with the documentary (www.preventabledoc.com). I am still very… Continue reading 26 Months TSW
What a month. I feel so exhausted. I am desperately trying to raise money and find ideas for fundraisers with my Red Skin Syndrome Documentary (Preventable: Protecting Our Largest Organ), while also trying to stay motivated through personal struggles. Add Topical Steroid Withdrawal issues, and you’ve got the perfect tri-fecta. I post a lot of… Continue reading 25 Months Topical Steroid Withdrawal
On January 25th, I hit the 2 year mark! Not giving up! When I look in the mirror, I still see everything that is wrong — My face is extremely dry (hence all the skin on my shirt in the picture), I have a red mustache and a red, dry patch in-between me eyebrows, my… Continue reading 2 Years TSW!!!
To all my warriors and skin condition sufferers, As you may or may not know, I have been working on a documentary endeavor since October 1st regarding Red Skin Syndrome and the need to disseminate the extremely important information about the dangers of chronic steroid use. Strides have been made, yet it is nowhere near… Continue reading Call To Arms
Found in Reverie 