What a month. I feel so exhausted. I am desperately trying to raise money and find ideas for fundraisers with my Red Skin Syndrome Documentary (Preventable: Protecting Our Largest Organ), while also trying to stay motivated through personal struggles. Add Topical Steroid Withdrawal issues, and you’ve got the perfect tri-fecta. I post a lot of… Continue reading 25 Months Topical Steroid Withdrawal
On January 25th, I hit the 2 year mark! Not giving up! When I look in the mirror, I still see everything that is wrong — My face is extremely dry (hence all the skin on my shirt in the picture), I have a red mustache and a red, dry patch in-between me eyebrows, my… Continue reading 2 Years TSW!!!
It’s been awhile since I’ve posted a TSW update. I apologize. December 25th was my 23 month mark and my life has been upside down. I’ve lost track of the days. Staring at the calendar, I can’t believe it’s January 14th already. So, I wanted to post an update before my actual 2 year mark… Continue reading Almost 2 Years
Hello loves, sorry I am late. But, it’s my birthday!!! Yea! 28 years of being on this earth. I have been SUPER busy this month with the launch of my new website. Check her out! Preventable: Protecting Our Largest Organ Until Nov. 5th (ending soon!!) I will be hosting a fundraiser online for t-shirt sales… Continue reading 21 Months
This past weekend, I had the amazing privilege to meet Meghan and Theo Rossi during their Go Get It LIFE event in Staten Island, October 15th Over a year ago, they featured my story about battling Red Skin Syndrome. I have been following their site since then and am amazed at how many lives they have… Continue reading 5K Go Get It LIFE NYC
Hey loves. A lot has been going on, but I wanted to put out my first video from Washington DC on the September 11th weekend. I do apologize for the audio. I have the case on my GoPro camera so that sound gets muffled. I did my best. It’s not my best video, but I… Continue reading WASHINGTON DC #1
Big things in the works guys, sorry I have not been very active making videos and writing blogs but there will be PLENTY of them soon!! I am working on a website (hoping to post it publicly October 1st!) about my documentary endeavor to raise awareness about Red Skin Syndrome and the prevention that needs… Continue reading 20 Months TSW
I decided, for the first time ever, to write a note to a PA and leave it at their facility. I have seen this man (who is NOT a doctor, just a physicians assistant — which I was not aware of–) twice for two different problems. Both times I was extremely dissatisfied with his care. I… Continue reading Assembly Line Care
Hello all, Just another update. There isn’t much to tell, skin wise. My hands and elbow area are the most stagnant. My neck, face, and stomach have a few issues that fluctuate. The itch is still present and I had acrylic nails put on to help. Today, I am embarking on an experiment. It will… Continue reading 19 Months TSW
I have hit the 18 month mark. It still wows me. I get excited about these landmarks, not because I’m happy that I’ve been going through this for so long, but because of how proud I am that I have not given up the fight against this condition and the man! I will never give… Continue reading 1.5 Years of TSW
Found in Reverie 