It has been 2 weeks now since my stem cell infusion into my hip and arm. My hip is still sadly sore. I haven’t been able to rest it a lot in the sense of not moving around a lot since I do teach dance at school, but I have been mindful of not doing… Continue reading Week 2 Update (Stem cells)
It has been officially one week since my stem cell infusions. I had one into my hip, and one into my arm. My hip is still a bit sore. I wasn’t anticipating this, but I am a dance teacher and do have to move around a lot. I am trying my best to not jump… Continue reading Week 1 Update (Stem Cells)
I am a little late, but for good reason. I have been working very hard on the documentary and have found little time for other things. I did however get to take one full day off this Sunday (after working 1.5 weeks STRAIGHT, no weekend for me) and I went to Disney World!! It was… Continue reading Month 41 TSW
IID Conference, Part 1 IID Conference ,Part 2 Hello, lovelies. I am a few days late for my 40th month of TSW. I can’t believe I’m writing that number. I remember thinking about when I thought 1 year would have been long enough. Now I am close to 3.5 years. I still get that question… Continue reading 40 Months TSW
Amidst editing and trudging through all the hurdles with the documentary, I have been thinking about analogies concerning Topical Steroid Withdrawal. We are always having to try and explain, or make known, or express how frustrating this condition is in our lives. Especially with doctors, it never seems to gain stride as to how UNBEARABLE… Continue reading Willy Wonka
Hey loves, What a month it has been. Whenever I take a dive with my skin, it also effects my emotions. Once I had gotten back from the cruise ship, I got hit with a few scenarios and situations that gave me a load of anxiety (I am still trying to shake it). One major… Continue reading 39 Months TSW
Sorry for the late post. Been super busy with life! A little too busy sometimes, but trying to be semi normal with a hint of madness — particularly with the documentary. There is lots to get done, but I think I can finish it by my estimated time frame — mid June! As for my… Continue reading TSW 37 Months
3 Years TSW. 36 Months TSW. 1095 days TSW. January 25th 2015-2018. Incredible isn’t it? To have journeyed this long through such a katabasis. The reflection on the loss and gains, ups and downs, triumphs and devastations… it’s like a completely different life. I’m not healed, sadly. But I’ve been coming to terms with that.… Continue reading 3 Years TSW (Topical Steroid Withdrawal)
Tomorrow is Christmas, so I wanted to be a day early. It will be a packed celebratory time with family and friends tomorrow (which I hope I make it through!). Lots of driving, gifts, and hugs to be had. My energy, especially since beginning a work out regimen at the beginning of December, has actually… Continue reading 35 Months TSW
I didn’t exactly start off on the right foot this TSW month. Well, not totally true. I had my birthday, which was lovingly spent with family and my Royal comrades. I enjoyed a Halloween party as well, which was nice since I spent time and energy on my costume. I always wanted to be LeeLoo… Continue reading 34 Months TSW
Found in Reverie 