Oh my goodness, it’s been a whirlwind of a month! I got back from the documentary shoot on July 29th. A rest from the summer was EXTREMELY needed. I stayed at my mother’s house for about 5 days (she was away so I had it all to myself). I just rested, watched movies, and tried… Continue reading 31 Months TSW
I apologize in advance for the brief update. I am out on Day 20 now shooting the documentary, Preventable: Protecting Our Largest Organ. I must be clinically insane to have done this, but it has been magical so far, as well as exhausting. Want to follow along with my documentary journey? Here is how you… Continue reading 29 Months TSW
Forgive me, my posts are becoming later and later since my schedule is super swamped with the documentary production starting only ONE WEEK away! If anyone is interested in tracking my while I shoot (or would like to know about it in general) here is the website: PREVENTABLE WEBSITE You can also follow me on… Continue reading 28 Months
Hey loves, Sorry this is 2 days late. Things have been all over the place with getting ready for the documentary. I am still fundraising and need just about 2k more to have everything I need paid for (for production purposes). We can worry about editing funding later. I’m super nervous/excited/psyched to have this opportunity.… Continue reading 27 Months TSW (Topical Steroid Withdrawal)
What a month. I feel so exhausted. I am desperately trying to raise money and find ideas for fundraisers with my Red Skin Syndrome Documentary (Preventable: Protecting Our Largest Organ), while also trying to stay motivated through personal struggles. Add Topical Steroid Withdrawal issues, and you’ve got the perfect tri-fecta. I post a lot of… Continue reading 25 Months Topical Steroid Withdrawal
On January 25th, I hit the 2 year mark! Not giving up! When I look in the mirror, I still see everything that is wrong — My face is extremely dry (hence all the skin on my shirt in the picture), I have a red mustache and a red, dry patch in-between me eyebrows, my… Continue reading 2 Years TSW!!!
To all my warriors and skin condition sufferers, As you may or may not know, I have been working on a documentary endeavor since October 1st regarding Red Skin Syndrome and the need to disseminate the extremely important information about the dangers of chronic steroid use. Strides have been made, yet it is nowhere near… Continue reading Call To Arms
Hey loves! I wanted to put a post together where you could locate all 3 of my ITSAN videos. We spent 3 days in Washington, D.C. this past September 2016. I was a patient advocate and tried my darnedest to keep up with the medical jargon and terms being thrown around. I hope these videos… Continue reading Washington, D.C. Videos
Big things in the works guys, sorry I have not been very active making videos and writing blogs but there will be PLENTY of them soon!! I am working on a website (hoping to post it publicly October 1st!) about my documentary endeavor to raise awareness about Red Skin Syndrome and the prevention that needs… Continue reading 20 Months TSW
I decided, for the first time ever, to write a note to a PA and leave it at their facility. I have seen this man (who is NOT a doctor, just a physicians assistant — which I was not aware of–) twice for two different problems. Both times I was extremely dissatisfied with his care. I… Continue reading Assembly Line Care
Found in Reverie 