I didn’t exactly start off on the right foot this TSW month. Well, not totally true. I had my birthday, which was lovingly spent with family and my Royal comrades. I enjoyed a Halloween party as well, which was nice since I spent time and energy on my costume. I always wanted to be LeeLoo… Continue reading 34 Months TSW
Usually around Thanksgiving we reflect on our surroundings, our decisions, and what we have taken for granted in our lives that deserve recognition. Or is that just me??… And I usually shine a light on my phenomenal inner circle of friends and on my family who has gone above and beyond these past few years.… Continue reading THANKFUL TO ITSAN
Another month passed, and not much to report skin wise. I am still stagnant, with my tough areas being — hands, arms, neck, and face. My stomach is acting up, too, but it’s not the most problematic area. It gets a bit exhausting dealing with my facial area and my hands being so frustrating, but… Continue reading 33 Months TSW
I’m a bit late, but I’ve been very busy this past week with documentary footage. I have a goal ahead of me. I would like to have all of the interview footage transcribed by Oct. 26th, before I head back into teach for a week at Royal Caribbean. There is over 24 hours of footage… Continue reading 32 Months TSW
Oh my goodness, it’s been a whirlwind of a month! I got back from the documentary shoot on July 29th. A rest from the summer was EXTREMELY needed. I stayed at my mother’s house for about 5 days (she was away so I had it all to myself). I just rested, watched movies, and tried… Continue reading 31 Months TSW
I apologize in advance for the brief update. I am out on Day 20 now shooting the documentary, Preventable: Protecting Our Largest Organ. I must be clinically insane to have done this, but it has been magical so far, as well as exhausting. Want to follow along with my documentary journey? Here is how you… Continue reading 29 Months TSW
Hey loves, Sorry this is 2 days late. Things have been all over the place with getting ready for the documentary. I am still fundraising and need just about 2k more to have everything I need paid for (for production purposes). We can worry about editing funding later. I’m super nervous/excited/psyched to have this opportunity.… Continue reading 27 Months TSW (Topical Steroid Withdrawal)
What a month. I feel so exhausted. I am desperately trying to raise money and find ideas for fundraisers with my Red Skin Syndrome Documentary (Preventable: Protecting Our Largest Organ), while also trying to stay motivated through personal struggles. Add Topical Steroid Withdrawal issues, and you’ve got the perfect tri-fecta. I post a lot of… Continue reading 25 Months Topical Steroid Withdrawal
On January 25th, I hit the 2 year mark! Not giving up! When I look in the mirror, I still see everything that is wrong — My face is extremely dry (hence all the skin on my shirt in the picture), I have a red mustache and a red, dry patch in-between me eyebrows, my… Continue reading 2 Years TSW!!!
To all my warriors and skin condition sufferers, As you may or may not know, I have been working on a documentary endeavor since October 1st regarding Red Skin Syndrome and the need to disseminate the extremely important information about the dangers of chronic steroid use. Strides have been made, yet it is nowhere near… Continue reading Call To Arms
Found in Reverie 