Hey Guys! Here is my new video!! Sorry, this post is a bit late. These past few weeks have been a roller coaster. 1) My husband, Jack, has left for tour. He is now an Assistant Carpenter for Disney On Ice’s “Dare To Dream” show. I am so proud of him. I know it was… Continue reading 2/3 of a Year! (8 Months TSW)
Yea for 1 year of marriage with my husband!! Crap that I’ve been going through TSW for 7.5 months!! Ha, kind of funny, but not. For our 1 year, I decided that I didn’t care how I felt, we WERE going to have a nice time in Atlanta, GA. We went to the Aquarium on… Continue reading 7.5 Months (and my 1 year marriage anniversary)
The longer time passes, the more permanent this condition seems to be. It’s crazy to think that almost half of a year has gone by and I am still in this hell, all from using topical steroids that a doctor prescribed me. They are so dangerous. Topical steroids can destroy your life. FACE/SCALP/NECK As you… Continue reading 5 Hefty Months
Wrote this a long time ago. But, it feels pretty present. Wings Like Eagles – May 2, 2011 Sometimes things happen in your life that you can’t control, no matter how hard you try. Sometimes you have to get going even when the going is tough. Sometimes you have to hit the floor in order… Continue reading Girl on Fire
I can’t believe it’s been 4 months. I don’t know how people can live with this for YEARS. Four months is already torture enough. Since shaving my head, I have been trying to get the dryness down. Not going as fast as I had hoped, but I am doing the best I… Continue reading 4 flippin’ flaky months!
April 25th, 2015 marked 3 months of my TSW journey. It’s been quite a ride, one that I do wish would end. Progress: or lack their of… After debarking the cruise, I hoped my face would stay the same. Something about the cruise ship air made my skin a bit more bearable. However, since I’ve… Continue reading A Full 3 Months
I’m Back!!! I was gone from April 4th till April 18th aboard the Oasis of the Seas. This was not for a vacation, but to work. I was on nighttime rehearsals (from 12am to 8am) helping to install a Royal Caribbean show. To be honest, I was petrified that my skin would go crazy, that… Continue reading Cruise Life — TSW Days (70-83)
I am mid way through Month 2 of my Topical Steroid Withdrawal. It has been a roller coaster of things: flakes, hot red skin, ooze, lethargy, baths baths baths, itching, death of my social interaction, biopsies, ultrasound, and lots of vacuuming Medically: I am fluctuating on the low blood pressure scale. It’s been better these past… Continue reading TSW Month 2
I apologize for being a silent, storming cloud. I’m almost 2.5 months into my TSW (topical steroid withdrawl). Somehow the hands on my clock rocket through the days. I am lethargic, staring at my TV as it plays episodes of Big Bang Theory, Friends, and Sons of Anarchy. It can feel like 20 mins has… Continue reading Play Those Cards
I felt another one hit wonder coming on. This is for my TSW friends. (and others!) *sung to the tune of Taylor Swift’s new song ‘Style’ Midnight, Eyes wide open feel so sleep deprived Skin tight, Could end in an itching fit, am I alive? Fade into view, oh, the mirror casts an image thats… Continue reading Sing Along Song
Found in Reverie 